Where are we at with the diagnostic terms hEDS, HSD, JHS and hypermobility?
Over the past few months, I’ve interacted with many different health care professionals – physiotherapists, rheumatologists,...
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- 3 min
Explaining An HMS To Friends and Family
A letter to a ‘loved one’ by Kirsty Turner, on understanding a Hypermobility Syndrome, such as hEDS or HSD Dear Loved One, As I have...
- 1 min
Keeping Cool For The Summer
The temperature is climbing here in the Northern hemisphere and for those that have PoTs in particular it means we will need to be a bit...
- 2 min
How Do People Living With Hypermobility Syndromes Get Through Mundane Tasks?
By Sophie Harvey During these strange times, routine has been vital for me, both for pacing purposes and for my sanity. It helps give me...
- 1 min
How the HMSA's Webinars Have Helped Me With Hypermobility Syndromes
Thank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping...
- 1 min
Advice For Life With hEDS
‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...
- 10 min
Rare Disease Day 2020, Zoe's story, Arthrochalasia
My EDS Story – Zoe Lewis I have Ehlers-Danlos type 7. Arthrochalasia, there are believed to be around 40 confirmed cases in the world...