5 minHow can Hypermobility Syndromes affect life insurance?Thank you to Reassured who have written this sponsored blog post which we hope may be of interest. As a result of the COVID-19 pandemic,...
5 minWhere are we at with the diagnostic terms hEDS, HSD, JHS and hypermobility?Over the past few months, I’ve interacted with many different health care professionals – physiotherapists, rheumatologists,...
1 minGetting Physical When Fully FloppedIn 2019 our #HMSAware campaign focused on the challenges of staying active with a hypermobility syndrome, exercising enough to stay...
11 minPosture and MovementDr Bull developed an interest in the Alexander technique when in training as a rheumatologist in the 1980s. He has taken lessons, and has...
1 minKeeping Cool For The SummerThe temperature is climbing here in the Northern hemisphere and for those that have PoTs in particular it means we will need to be a bit...
2 minHow Do People Living With Hypermobility Syndromes Get Through Mundane Tasks?By Sophie Harvey During these strange times, routine has been vital for me, both for pacing purposes and for my sanity. It helps give me...
1 minHow the HMSA's Webinars Have Helped Me With Hypermobility SyndromesThank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping...
1 minAdvice For Life With hEDS‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...
10 minRare Disease Day 2020, Zoe's story, ArthrochalasiaMy EDS Story – Zoe Lewis I have Ehlers-Danlos type 7. Arthrochalasia, there are believed to be around 40 confirmed cases in the world...
4 minOsteogenesis imperfecta - More than just brittle bones!As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...
3 minHMSAware - My One True Medic"After over 10 years suffering the excruciating pain and debilitating effects of bilateral plantar fascitis I was to finally meet a new...
4 minMarfan syndrome, EDS is not the only 'fruit' of the hypermobility family treeThe #BendyBasics arm of the 2016 #HMSAware campaign covered a number of areas, but this post, in particular, fits very nicely into this...
2 minPacing, Illness and HSDAs a general rule, I don't refer to my disabling conditions (HSD, POTS etc) as being ill or being sick. Why - when they can make me feel...