Hypermobility Syndrome Disorders

How can Hypermobility Syndromes affect life insurance?

Thank you to Reassured who have written this sponsored blog post which we hope may be of interest. As a result of the COVID-19 pandemic,...

Where are we at with the diagnostic terms hEDS, HSD, JHS and hypermobility?

Over the past few months, I’ve interacted with many different health care professionals – physiotherapists, rheumatologists,...

Getting Physical When Fully Flopped

In 2019 our #HMSAware campaign focused on the challenges of staying active with a hypermobility syndrome, exercising enough to stay...

Posture and Movement

Dr Bull developed an interest in the Alexander technique when in training as a rheumatologist in the 1980s. He has taken lessons, and has...

Keeping Cool For The Summer

The temperature is climbing here in the Northern hemisphere and for those that have PoTs in particular it means we will need to be a bit...

How Do People Living With Hypermobility Syndromes Get Through Mundane Tasks?

By Sophie Harvey During these strange times, routine has been vital for me, both for pacing purposes and for my sanity. It helps give me...

How the HMSA's Webinars Have Helped Me With Hypermobility Syndromes

Thank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping...

Advice For Life With hEDS

‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...

Rare Disease Day 2020, Zoe's story, Arthrochalasia

My EDS Story – Zoe Lewis I have Ehlers-Danlos type 7. Arthrochalasia, there are believed to be around 40 confirmed cases in the world...

Osteogenesis imperfecta - More than just brittle bones!

As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...

HMSAware - My One True Medic

"After over 10 years suffering the excruciating pain and debilitating effects of bilateral plantar fascitis I was to finally meet a new...

Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

The #BendyBasics arm of the 2016 #HMSAware campaign covered a number of areas, but this post, in particular, fits very nicely into this...

Pacing, Illness and HSD

As a general rule, I don't refer to my disabling conditions (HSD, POTS etc) as being ill or being sick. Why - when they can make me feel...