Book your FREE places now for our BIG hypermobility awareness weekend in June!
- Communications
- Jun 13
- 5 min read
Updated: Jun 27
We are in the middle of a very busy June culminating in a FREE advice-packed awareness weekend coming up on the 28th and 29th June. Come to the free events and listen to advice from leading experts as well as those with lived experience who really ‘get it’ and understand what living with hypermobility is really like.
This is a weekend for our community to come together to learn and share. Save the date now, book in for free events, and help us to spread the word – just keeping scroll down to book. (Huge thanks to The National Lottery Community Fund for making this possible.) All sessions will be recorded and shared subsequently, so do register even if you can’t make it to the sessions live.
The BIG Awareness Weekend – all events are FREE June 28th and 29th 2025
The theme for the weekend is …Flexible joints? The bigger picture…
What does being hypermobile mean for you? Come and join us for a range of FREE events on 28th/29th June which will help you to join the dots. All these events are online. Please help us to spread the word and to share this information widely and share our social media posts if you can. To book all the events just click here:
Saturday 28th June
Hypermobility 101 with Jo Southall and Kim Clayden @11.30
This session will be led by the brilliant Jo Southall (Occupational Therapist) and awesome Kim Clayden (Psychotherapist) – both of whom have lived experience and really ‘get it’. Jo and Kim will give a broad overview of hypermobility, the possible causes and the ways it may affect you. They’ll also talk about the signs you may miss (do you regularly catch your sleeve on a door handle too 😊?) and would love this part of the session to be interactive and hear about your experiences. They will also provide recommendations for on things to look out for; how to navigate key life events and transition points; practical tips and advice on simple things you can do to look after yourself – whether you are mildly or more severely affected. There will be plenty time for Q&A. Dr Philip Bull, Rheumatologist, will be joining the Q&A section of the call, alongside Jo and Kim.
Peer-led National Support Group, topic pain management – 2pm online – @2pm online (Free and open to all)
Come and join this session led by our fantastic Midlands Support Group Volunteers which will be focussing on pain management. There be lots of opportunities to share and learn from others in a supportive environment. These peer support groups are somewhere you can openly chat to others who have similar issues and experiences – people who just ‘get it’. These sessions – usually just members only – are a chance to share hints and tips on managing hypermobility related issues and discuss treatments/therapies.
Lorna Ryan – Hypermobility and Nutrition open Q&A 28th @ 4.30pm (Free and open to all)
We are delighted that Lorna Ryan, a highly experienced Registered Clinical Nutritionist and leader in this field will be joining us to share her wide-ranging expertise. Lorna's clinical interest is directed by her personal experiences of living with hEDS. Lorna's advice is always amazing, calm and practical and based on her extensive expertise. Please bring all your nutrition-based questions! Lorna is waiting to hear from you. (Note: Lorna will be able to give lots of great advice but can only deal with general questions in this session - not deal with very specialised case specific details.)
Sunday 29th June
All About Orthotics with Helen McCormack – Orthotist, 29th at 11.30am (Free and open to all)
Want to learn more about orthotics, how they help and what to expect? Come and learn more with Helen McCormack, experienced Orthotist. Helen will explain more about: an introduction to orthotics services in general; what to expect in your appointment; how you can be referred in; different devices available; plus, lots and lots of time for Q&A. Helen has been working in Orthotics for 10 years in the North East. Helen spent a number of years educating the Orthotics profession on hypermobility, highlighting how and when it is best to supply insoles and body segment braces, including Lycra garments. Her aim is to now help bring awareness of Orthotics as a whole and their benefits to other professions and users.
Hypermobility and Exercise with Jeannie Di Bon – 29th at 3pm (Free and open to all)
This session will be led by the fantastic Jeannie Di Bon and explore and focus on how to exercise safely with hypermobility/ EDS/HSD; address common challenges we face with how to progress with exercise AND how to get started if exercise always flares you and answer any exercise related questions. Jeannie Di Bon is a Movement Therapist based in London specializing in working with people with hypermobility, Ehlers-Danlos Syndrome (EDS) and chronic pain. Originally trained in Pilates, over the past decade her research and study have gone on to encompass biomechanics, anatomy, neuroscience and pain management.
Keep an eye on our socials as we’ll have more things coming up which we’ll share very soon...
Tell your story and help us to raise awareness
As part of our awareness month this June we want to bring our community together, to share stories and raise awareness about hypermobility – whatever the cause, whatever the severity. Can you help us? We are looking for people to tell their stories…either on video (max 2 minutes), audio or using written words (max 500 words, ideally 300) or drawings/pictures. Tell us your story in the way that works best for you.
Patient stories and lived experience are important tools in raising awareness and improving understanding of hypermobility related symptoms and issues, and in patient peer support - so we can feel connected, know we aren't alone, and learn from each other's experiences. We are really keen to hear from everyone affected with symptomatic hypermobility whatever the cause – e.g. Hypermobility Spectrum Disorder, hEDS, EDS, Marfan Syndrome, Osteogenesis Imperfecta, Stickler Syndrome, Pseudoxanthoma elasticum, acquired symptomatic hypermobility or another related condition.
The theme for the stories is ‘overcoming challenges’. We’d love you to tell us about how hypermobility affects your daily lives, the main challenges or issues for you personally AND the things that you have found most helpful to manage your symptoms and improve you quality of life (e.g. it could be managing fatigue, pain, gastro issues, - whatever is most relevant to you.)
How to share: You can share you stories here (If you have any questions, please email: stories@hypermobility.org)
We can’t wait to hear from you! 😊 Thank to those of you who have already shared your story.
This awareness weekend is funded by the national lottery community fund.
I had the pleasure of using Express Scripts Pharmacy, and I couldn't be happier with the experience! The customer service team was incredibly friendly and attentive, making the entire process smooth and enjoyable. They answered all my questions with patience and provided helpful guidance on my prescriptions, also find customer service contacts at https://express-scripts.pissedconsumer.com/customer-service.html . I was pleasantly surprised by how quickly my order was processed and shipped right to my door. It's such a relief to have a pharmacy that truly cares about its customers. I highly recommend Express Scripts for anyone looking for a hassle-free and delightful pharmacy experience!
TrueFlip’s solana crypto casino section offers something I haven’t found elsewhere: a smooth, lightning-fast gaming environment powered by one of the best blockchains. SOL deposits are instant, and winnings land in my wallet within minutes. The games are entertaining, especially the live casino where everything works flawlessly. What’s more, the site feels professional and trustworthy, with solid customer support and no gimmicks. I’ve had a few big wins already and had no issues withdrawing. For anyone tired of slow Ethereum casinos, this is a breath of fresh air. Solana and TrueFlip are a great combo.
I just booked my Retro Bowl College place for the Hypermobility Awareness Weekend! I am excited to hear from people who truly understand what it's like and to pick up some practical tips.