Share your story

Patient stories and lived experience are important tools in raising awareness and improving understanding of hypermobility related symptoms and issues, and in patient peer support - so we can feel connected, know we aren't alone, and learn from each other's experiences.

So if you have a story to share, please submit it using the form below.

We are especially interested in stories that cover how hypermobility affects your daily life - the symptoms, challenges or issues you face, and the things that you have found most helpful in managing those symptoms, challenges or issues.

Written stories should be a maximum of 500 words (300 or less is best), and audio or video stories should be 2 minutes or less.

All stories submitted, and/or extracts from them, may be used in various ways, including (but not limited to) on the HMSA website, blog, social media posts, and grant applications. We may not always be able to use your entire story and may use extracts from them instead. Anything you submit (including images) must be your own work, and you must have the right to share it.

Send us your story!

First name

Last name

Phone

Please upload your file(s) below - video, audio, word doc or image. If you'd like to submit a written story and a photo, please do. The maximum video size is 2GB, the maximum audio file size is 50MB, and the maximum image size is 25MB.

Upload file 1

Upload file 2

Please write in the box below exactly how you would like your name (or pseudonym) to appear when we share your story - including any title, or descriptor you would want us to include. (for example: Ms J Smith. or: Anonymous. Or: Hannah - patient with symptomatic hypermobility. )

Name to publish with your story

Anything else you'd like us to know

I give the HMSA permission to use the files I am submitting here and extracts from them in their work, including but not limited to, on their website, publications, grant applications, and social media posts.

I confirm that the files submit are my own work and that I have full rights to share them and permit the HMSA to use them without restriction. I confirm I have permission from anyone else featured in photo or video files. If anyone featured is under the age of 18, I confirm that I give my permission as their parent/guardian or that I have already gained permission from their parent/guardian.

If, after submitting your story, you wish to withdraw your consent, please email Stories@hypermobility.org.