My HMSA story
In December 2008, my partner proposed to me, and I was absolutely over the moon. I started planning my dream wedding for that July, only...
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- 4 min
Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain
By Jenny LL Csecs1,2†, Valeria Iodice3,4†, Charlotte L Rae5, Alice Brooke2, Rebecca Simmons2, Lisa Quadt1, 2, Georgia K Savage1, 2...
- 3 min
Working is Not your Worth by Sophie Harvey
Originally posted some years ago, this important blog fell off the website during a move. We have seen a number of people beating...
- 2 min
HAPPY BRAIN CHEMICALS TO MAKE YOU FEEL GOOD!
HAPPY BRAIN CHEMICALS TO MAKE YOU FEEL GOOD! Your daily D.O.S.E The image below was designed by the lovely Kim, as a quick and easy...
- 5 min
How can Hypermobility Syndromes affect life insurance?
Thank you to Reassured who have written this sponsored blog post which we hope may be of interest. As a result of the COVID-19 pandemic,...
- 4 min
Hypermobile actress Olivia D'Lima nominated for best newcomer award at National Television Awards
Olivia D'Lima, best known for her role as Fenisha Khatri in the hit BBC series Casualty, has been nominated for the best newcomer...
- 5 min
Where are we at with the diagnostic terms hEDS, HSD, JHS and hypermobility?
Over the past few months, I’ve interacted with many different health care professionals – physiotherapists, rheumatologists,...
- 1 min
Getting Physical When Fully Flopped
In 2019 our #HMSAware campaign focused on the challenges of staying active with a hypermobility syndrome, exercising enough to stay...
- 11 min
Posture and Movement
Dr Bull developed an interest in the Alexander technique when in training as a rheumatologist in the 1980s. He has taken lessons, and has...
- 3 min
Explaining An HMS To Friends and Family
A letter to a ‘loved one’ by Kirsty Turner, on understanding a Hypermobility Syndrome, such as hEDS or HSD Dear Loved One, As I have...
- 1 min
Carers Week 2020 Is Here
Many of our community are or have unpaid carers in their lives. 2020 has been a strange year for everyone, but with people...
- 1 min
Keeping Cool For The Summer
The temperature is climbing here in the Northern hemisphere and for those that have PoTs in particular it means we will need to be a bit...
- 3 min
Hypermobility Syndromes Association COVID-19 Collated Resources
The HMSA would like to reassure our followers and members that due to our operating structure (with all team members working remotely...
- 2 min
How Do People Living With Hypermobility Syndromes Get Through Mundane Tasks?
By Sophie Harvey During these strange times, routine has been vital for me, both for pacing purposes and for my sanity. It helps give me...
- 1 min
How the HMSA's Webinars Have Helped Me With Hypermobility Syndromes
Thank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping...
- 1 min
Advice For Life With hEDS
‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...
- 10 min
Rare Disease Day 2020, Zoe's story, Arthrochalasia
My EDS Story – Zoe Lewis I have Ehlers-Danlos type 7. Arthrochalasia, there are believed to be around 40 confirmed cases in the world...
- 4 min
Osteogenesis imperfecta - More than just brittle bones!
As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...
- 3 min
One step removed - a Grandparent’s view
What are all these new conditions we keep hearing about, Ehlers-Danlos, hypermobility, classical - is our granddaughter not just double...
