Recordings from the HMSA's Big Hypermobility Awareness Weekend

Below are the webinar recordings from our big weekend on the 28th-29th June 2025.

Hypermobility 101 with Jo Southall and Kim Clayden

Click here for chat highlights and key links from the Hypermobility 101 webinar

 LinkFairy 11:31 to everyone: Hello and welcome to Hypermobility101 session from the hypermobility syndromes association (The HMSA - hypermobility.org) You can find details of our other events on the website or follow our socials (all @HMSACharity) to keep up with what we're up to. You'll notice when admitted that your camera will be off and your microphone muted. This is to prevent overwhelming our team. Please direct Questions to the HMSA-LinkFairy account, this allows the team to do their thing without attempting to also scroll up and down a jumping chat box live! This session will be recorded and available on the website to replay as soon as is realistically possible. This is a busy weekend, and that's a manual process, so please be patient - you'll receive an e-mail with the link to replays once our LinkFairy has had sufficient sleep and coffee to wrangle all the VT and get it onto the website. This session is being funded by The National Lottery Community Fund, to get free access to more content like this year round, please consider becoming an HMSA member here: https://www.hypermobility.org/become-a-member 

THIS IS THE CHAT! 🔗🧚‍♀️👋 LinkFairy 11:36

Jo Southall's website: http://www.jboccupationaltherapy.co.uk hello@jboccupationaltherapy.co.uk

 Kim Clayden's website: http://www.online-psychotherapist.com 

https://www.hypermobility.org/local-anaesthetic 

LinkFairy 11:47 https://www.hypermobility.org/longcovid HMSA,

Lisa 12:03 This so true! Didn't join all the dots until I joined the HMSA as everyone in my family is flexible and everyone the same :)

LinkFairy 12:09 https://www.bsms.ac.uk/about/news/2022/02-02-neurodivergent-people-more-likely-to-experience-pain-due-to-hypermobility.aspx 

https://www.eds.clinic/articles/ehlers-danlos-syndrome-fluoroquinolones 

https://www.hypermobility.org/hormones-and-hypermobility 

HMSA, Lisa 12:13 (Edited) How the chat on Zoom looks 😕, changed a few weeks back...if you look at the chat box...in the top left-hand corner is an icon - a blue square with a pencil in it. Click on this and you'll be able to access a drop down box of options and message our link fairy. 🤞 LinkFairy 12:14 https://pmc.ncbi.nlm.nih.gov/articles/PMC3365276/ 🔗🧚‍♀️ - There are nearly 300 joints in the human body - Beighton tests 5 https://www.hypermobility.org/quickreferenceguide A new screening tool – The Spider LinkFairy 12:19 https://www.hypermobility.org/post/a-new-screening-tool-the-spider https://www.hypermobility.org/types-of-hms 

https://www.hypermobility.org/news/launch-of-new-hypermobility-quick-reference-guide

 LinkFairy 12:31 https://www.eds.clinic/articles/ehlers-danlos-syndrome-comorbidities https://www.potsuk.org/ https://www.mastcellaction.org LinkFairy 12:40 ERYTHROMYALGIA (in case anybody wants to look that up but has no idea how it's spelled, thank you captions) https://www.hypermobility.org/events 

We love a podiatrist. Solid foundations and so on Quick Reference Guide https://www.hypermobility.org/_files/ugd/518d8c_70c5473577c84eb98cad62d28bef0f81.pdf Jo Southall (they/she) 12:45 Orthotics for injury management is so important. If you know you're going to get injured doing a specific thing, splint up for safety. HMSA, Lisa 12:45

Before you go...please help us by filling in the feedback form. If you've found this session helpful, please take a few seconds to fill in our Live events Feedback form https://forms.office.com/e/2bxehy8ZZZ - your feedback really helps us as we plan future support and events, we genuinely value it enormously. If watching on Replay please use "Hypermobility 101" in the event field LinkFairy 12:49 It means so much to us to offer this weekend's events free thanks to funding from The National Lottery Community Fund. We truly hope it provides you with connection, information, and support. There is no obligation to donate (especially if you are already an HMSA member) but if you feel able to do so your support can help us continue creating these safe, welcoming, and vital spaces where people living with hypermobility can feel heard, understood, and supported.

To donate click here: https://tinyurl.com/yc2s6fns Thank you. Any amount, however small, will make a huge difference to people affected by hypermobility. Or to get free access to more content like this year round, please consider becoming an HMSA member here: https://www.hypermobility.org/become-a-member

Hypermobility and nutrition, with Lorna Ryan

Click here for chat highlights and key links from the Hypermobility and nutrition webinar

Lorna's information: https://lornaryanhealth.com/

That My Symptoms App: https://www.mysymptoms.net/

HMSA, Lisa 17:02 Do send any questions to me:)

LinkFairy 17:16 Your feedback is always super helpful and valuable to us. It drives our content! Before you dash off after this session, we'd be really grateful, it takes just 2 mins if you can to fill in this very quick form before you go. Thank you so much. 🙂https://forms.office.com/e/2bxehy8ZZZu

It means so much to us to offer this weekend's events free thanks to funding from The National Lottery Community Fund. We truly hope it provides you with connection, information, and support. There is no obligation to donate (especially if you are already an HMSA member) but if you feel able to do so your support can help us continue creating these safe, welcoming, and vital spaces where people living with hypermobility can feel heard, understood, and supported. To donate click here: h ttps://tinyurl.com/yc2s6fns or to be come a member Thank you. Any amount, however small, will make a huge difference to people affected by hypermobility.

HMSA, Lisa 17:35 Before you go...please help us by filling in the feedback form. If you've found this session helpful, please take a few seconds to fill in our Live events Feedback form https://forms.office.com/e/2bxehy8ZZZ - your feedback really helps us as we plan future support and events, we genuinely value it enormously.

Hypermobility & Orthotics with Helen McCormack

Click here for chat highlights and key links from the hypermobility and orthotics webinar

LinkFairy 11:29 Good Morning and welcome to Hypermobility & Orthotics with Helen McCormack (The HMSA - hypermobility.org) You can find details of our other events on the website or follow our socials (all @HMSACharity) to keep up with what we're up to. You'll notice when admitted that your camera will be off and your microphone muted. This is to prevent overwhelming our team. Please direct Questions to Kim Clayden via the chat (message), please , she will facilitate the Q&A part of today's session. Session will begin shortly.

LinkFairy 11:31 Good Morning and welcome to Hypermobility & Orthotics with Helen McCormack (The HMSA - hypermobility.org) You can find details of our other events on the website or follow our socials (all @HMSACharity) to keep up with what we're up to. You'll notice when admitted that your camera will be off and your microphone muted. This is to prevent overwhelming our team. Please direct Questions to Kim Clayden, please , she will facilitate the Q&A part of today's session. Session will begin shortly. LinkFairy 11:31

THIS IS THE CHAT!

LinkFairy 11:31 This session will be recorded and available on the website to replay as soon as is realistically possible. This is a busy weekend, and that's a manual process, so please be patient - you'll receive an e-mail with the link to replays and all associated links once our LinkFairy has had sufficient sleep and coffee to wrangle all that VT and get it onto the website. This session is being funded by The National Lottery Community Fund, to get free access to more content like this year round, please consider becoming an HMSA member here: https://www.hypermobility.org/become-a-member

Kim Clayden 11:34 Please direct your questions for Helen to me 🙂 - thank you! LinkFairy 11:35 You can find information about Helen's work with Peacocks, here: https://www.peacocks.net/medical/our-people

LinkFairy 11:38 That register is here: https://www.hcpc-uk.org/

HMSA, Lisa 11:38 (Edited) Huge thanks to the wonderful Kim Clayden for joining us again today. 🙂 She will facilitate the questions...please send any questions directly to Kim.

LinkFairy 12:14 https://ovalfingersplint.com/ as mentioned by Jo yesterday, these are beige, but magically adapt to appear the same colour as any surface they're not meant to be on when dropped. LinkFairy 12:19 Corrected Link: https://www.hypermobility.org/post/dynamic-fabric-supports-for-more-functional-hypermobile-joints Y

LinkFairy 12:22 https://www.dmorthotics.com/

https://www.jobskin.co.uk/

HMSA, Lisa 12:23 https://www.allarduk.co.uk/

It means so much to us to offer this weekend's events free thanks to funding from The National Lottery Community Fund. We truly hope it provides you with connection, information, and support. There is no obligation to donate (especially if you are already an HMSA member) but if you feel able to do so your support can help us continue creating these safe, welcoming, and vital spaces where people living with hypermobility can feel heard, understood, and supported. To donate click here: https://tinyurl.com/yc2s6fns or to be come a member here: https://www.hypermobility.org/become-a-member Thank you. Any amount, however small, will make a huge difference to people affected by hypermobility. HMSA, Lisa 12:28 Before you go...please help us by filling in the feedback form. If you've found this session helpful, please take a few seconds to fill in our Live events Feedback form https://forms.office.com/e/2bxehy8ZZZ - your feedback really helps us as we plan future support and events, we genuinely value it enormously.

12:33 Midwifery physios will know more about SI belts than most. ;)

HMSA, Lisa 12:34 (Edited) We know this session is running over...we just want to answer as many questions as possible...if you need to go we completely understand, we'll share the full recording with you all later...just allow us a little time to do this...been a fantastic, but super busy weekend. Thank you for coming :)

Hypermobility and Exercise with Jeannie Di Bon

Click here for chat highlights and key links from the hypermobility and exercise webinar

00:20:46 LinkFairy: Stay safe and cool, folks, and hydrate! https://www.hypermobility.org/post/keeping-cool-for-the-summer

LinkFairy: Jeannie's website with all her contact and socials information: Movement Therapy for Hypermobility & Ehlers-Danlos Syndrome https://jeanniedibon.com/

00:24:54 LinkFairy: Hypermobility without tears (other booksellers are available etc) https://amzn.eu/d/aOHxksq

00:31:13 LinkFairy: That research,: PubMed - https://pubmed.ncbi.nlm.nih.gov/40325650/ 00:31:57 

LinkFairy: Secondary school PE teachers have a lot to answer for....

00:33:57 LinkFairy: More about the Zebra Club: The Zebra Club App | Movement Therapy for EDS and Hypermobility https://www.thezebra.club/

00:42:17 LinkFairy: A note on terminology (EDS/HSD/JHS/Symptomatic-Hypermobility and so on), the complexity and confusion of all the different conditions and why we're a little more relaxed about them here: https://www.hypermobility.org/post/where-are-we-at-with-the-diagnostic-terms-heds-hsd-jhs-and-hypermobility The blog is due an update, tl:dr whatever they're calling your hypermobility syndrome right now, or in the future, it will still be symptomatic hypermobility later. There are many causes, but management of the symptomatic hypermobility aspect is largely the same. We're aware that many have thoughts about the 2026 EDS Criteria, we'd be interested to hear them. Use e-news@hypermobility.org to let us know how you feel about the different nomenclatures and how conditions other than EDS are represented. 00:51:46 LinkFairy: Remember folks, getting any specific exercise done correctly (using the right muscles, in the right order, without accidentally 'cheating') once is better than doing it all wrong ten times. 00:53:32 LinkFairy: That research Are People With Joint Hypermobility Syndrome Slow to Strengthen? - PubMed https://pubmed.ncbi.nlm.nih.gov/30599140/ 01:01:08 

LinkFairy: New Book: https://www.amazon.co.uk/Integral-Movement-Method-Hypermobility-Management-ebook/dp/B0DZ61JV4X 01:03:11 

LinkFairy: YouTube: YT: https://www.youtube.com/channel/UCh3dgBm_L5pwaeBQI-Q7yVw 01:04:42 LinkFairy: insta: https://www.instagram.com/jeannie_di/ 01:09:25 LinkFairy: FYI, if you can't stand on one leg without locking it, you need to learn to control that tiny range of 'neutral' for the knee- this is the type of thing Jeannie's referring to when she talks about softening the joint and learning to control the smaller, central part of the joint's range. 01:13:44 

LinkFairy: Basics: https://youtu.be/R6xdHmS398w

Proprioception: https://youtu.be/R6xdHmS398w

01:15:02 HMSA, Lisa: Before you go...please help us by filling in the feedback form. If you've found this session helpful, please take a few seconds to fill in our Live events Feedback form https://forms.office.com/e/2bxehy8ZZZ - your feedback really helps us as we plan future support and events, we genuinely value it enormously. 01:15:27 LinkFairy:CCI : https://youtu.be/R6xdHmS398w 01:15:46 LinkFairy: It means so much to us to offer this weekend's events free thanks to funding from The National Lottery Community Fund. We truly hope it provides you with connection, information, and support. There is no obligation to donate but if you feel able to do so your support can help us continue creating these safe, welcoming, and vital spaces where people living with hypermobility can feel heard, understood, and supported. To donate click here: https://tinyurl.com/yc2s6fns or to be come a member Thank you. Any amount, however small, will make a huge difference to people affected by hypermobility. 01:18:36 LinkFairy: Coathanger pain: https://youtu.be/R6xdHmS398w 01:25:42 LinkFairy: That Self compassion blog: https://jeanniedibon.com/the-science-of-self-compassion-self-compassion-exercises/ 01:28:55 Lisa: Thank you for coming. Completely understand if you need to go...just one more question :) 01:29:35 LinkFairy:🔗🧚‍♀️: Movement in water before swimming. Just be in the water and learn to move in it, but start small. Treading water absolutely counts as exercise. 01:32:08 LinkFairy: Your feedback is always super helpful and valuable to us.It drives our content! Before you dash off, we'd be really grateful Please just take 2 mins if you can to fill in this very quick form before you go. Thank you so much. 🙂https://forms.office.com/e/2bxehy8ZZZu

We plan to create another blog with additional key resources that have been created as part of this project.

Once you have watched any of these, please help us by filling in the feedback form. https://forms.office.com/e/2bxehy8ZZZ - your feedback really helps us as we plan future support and events, we genuinely value it enormously. If watching on Replay please put the event title in the event field.

 To get free access to more content like this year round and various support groups, and to support our work, please consider becoming an HMSA member here: https://www.hypermobility.org/become-a-member

Or if you are able, please considering donating here: https://tinyurl.com/yc2s6fns. Any amount, however small, will make a huge difference to our ability to support people affected by hypermobility.

With thanks to The National Lottery Community fund, who's funding made this project possible.