Ehlers-Danlos Syndrome

A teenagers perspective on pain

As a 14-year-old girl who suffers with hypermobility, I have found living with pain quite difficult at times, but I have found many ways...

Dynamic fabric supports for more functional hypermobile joints

An overview of recent research on the use of dynamic orthosis in symptomatic hypermobility.

Downloadable 'About hypermobility' info leaflet

A trifold leaflet giving an overview of hypermobility and how the Hypermobility Syndromes Association can help.

What my pain feels like

Editors note: Anne, our Nottingham Local Group Leader suffered a bout of painsomnia recently, which led to this rather marvellous...

6 Things I wish I’d known about exercise and hypermobility - a patient's perspective

I have a hypermobility syndrome (probably hypermobility Ehlers Danlos syndrome). The Hypermobility Syndromes Association’s (HMSA) topic...

A volunteer's story

I recently went to a genetics appointment for my 7-month-old little boy. When he was having his new born check, the doctor started asking...

A new screening tool – The Spider

By Simmonds JV1, 2, 3, Ellen Ewer1, 4, De Wandele Inge5, Kazkaz Hanadi2, 6, Ninis Nelly7, Rowe Peter8, Tang Eudora1, 6 Often, people with...

My HMSA story

In December 2008, my partner proposed to me, and I was absolutely over the moon. I started planning my dream wedding for that July, only...

How can Hypermobility Syndromes affect life insurance?

Thank you to Reassured who have written this sponsored blog post which we hope may be of interest. As a result of the COVID-19 pandemic,...

Where are we at with the diagnostic terms hEDS, HSD, JHS and hypermobility?

Over the past few months, I’ve interacted with many different health care professionals – physiotherapists, rheumatologists,...

Getting Physical When Fully Flopped

In 2019 our #HMSAware campaign focused on the challenges of staying active with a hypermobility syndrome, exercising enough to stay...

Posture and Movement

Dr Bull developed an interest in the Alexander technique when in training as a rheumatologist in the 1980s. He has taken lessons, and has...

Advice For Life With hEDS

‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...

Rare Disease Day 2020, Zoe's story, Arthrochalasia

My EDS Story – Zoe Lewis I have Ehlers-Danlos type 7. Arthrochalasia, there are believed to be around 40 confirmed cases in the world...

HMSAware - My One True Medic

"After over 10 years suffering the excruciating pain and debilitating effects of bilateral plantar fascitis I was to finally meet a new...

Pacing, Illness and HSD

As a general rule, I don't refer to my disabling conditions (HSD, POTS etc) as being ill or being sick. Why - when they can make me feel...