Ehlers-Danlos Syndrome

6 Things I wish I’d known about exercise and hypermobility - a patient's perspective

I have a hypermobility syndrome (probably hypermobility Ehlers Danlos syndrome). The Hypermobility Syndromes Association’s (HMSA) topic...

A volunteer's story

I recently went to a genetics appointment for my 7-month-old little boy. When he was having his new born check, the doctor started asking...

A new screening tool – The Spider

By Simmonds JV1, 2, 3, Ellen Ewer1, 4, De Wandele Inge5, Kazkaz Hanadi2, 6, Ninis Nelly7, Rowe Peter8, Tang Eudora1, 6 Often, people with...

My HMSA story

In December 2008, my partner proposed to me, and I was absolutely over the moon. I started planning my dream wedding for that July, only...

How can Hypermobility Syndromes affect life insurance?

Thank you to Reassured who have written this sponsored blog post which we hope may be of interest. As a result of the COVID-19 pandemic,...