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Research

Status:

Recruiting

Validating The Spider Tool

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Target Audience:

13-18yo with or without symptomatic hypermobility

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.ac.uk for more information. The image also contains a QR code :)

Status:

Recruiting

Chronic Illness Parenting Study

Parenting children with Chronic Illness

Target Audience:

Parents of children aged 5-12 with a chronic illness.

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Logos of research partners, the University of Manchester, European School of Osteopathy and University College London

Status:

Recruiting

Exploring the knowledge, assessment and management of symptomatic hypermobility in
adults among allied health professionals in UK. A national survey using the Modified HHQ

Exploring the knowledge, assessment and management of symptomatic hypermobility in
adults among allied health professionals in UK. A national survey using the Modified HHQ

Target Audience:

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UCL Logo in white on a purple background, with the text "STUDY PARTICIPANTS NEEDED Validating the Spider – a new screening tool for adolescents with symptomatic hypermobility Great Ormond Street Institute of Child Health - Jane Simmonds and Ellen Ewer"

Status:

Closed

Validating the Spider

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Target Audience:

13-18yo with symptomatic hypermobility

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Status:

Recruiting

Purpose of developing a new hypermobility multisystem symptom questionnaire The Spider

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Target Audience:

13-18yo with or without symptomatic hypermobility

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Mountain range, complete with snowcaps. In the foreground, a pine cone. Visible behind it a mature fir.

Status:

Recruiting

Transition from child to adult services survey (NCEPOD)

Transition from Child to Adult Services

Target Audience:

Young People, and parents/carers of young people.

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Black woman curled up hugging a pillow

Status:

Recruiting

Chronic Illness Survey Adventure.

Symptom Cluster Characterization in Complex Chronic Disease:

Target Audience:

Over 18, with PoTS, hEDS, MCAS, ME, CFS or Long COVID. Or healthy.

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Monstera leaves against a beige background. Text reads: Step By Step, Inch by Inch, You can make a difference in the hypermobile/EDS world. Participate in an online research study today.

Status:

CLOSED

Hypermobility and Sexual Function

Hypermobility and Sexual Function

Target Audience:

18+ AFAB English speaking wth a diagnosis of HSD, hEDS or cEDS

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