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HMSAware - Osteogenesis imperfecta - More than just brittle bones!
As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...
4 min read


HMSAware - Loeys-Dietz and differential diagnosis
In medicine, differential diagnosis is the distinguishing of a particular disease or condition from others that present similar symptoms....
5 min read


HMSAware - My One True Medic
"After over 10 years suffering the excruciating pain and debilitating effects of bilateral plantar fascitis I was to finally meet a new...
3 min read


Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree
The #BendyBasics arm of the 2016 #HMSAware campaign covered a number of areas, but this post, in particular, fits very nicely into this...
4 min read


HMSAware - Exercise, stay #HMSActive - Dawn Humberstone
Hypermobility Syndromes Awareness Week is upon us and we're receiving some wonderful answers to our #2020Hindsight question - "If you'd...
1 min read


Victory for Kids and Teens Social Media Volunteer!
You may have noticed the lack of posts from me again the past few weeks - but I was off fighting a better fight. Kids & teen related of...
2 min read


Pacing, Illness and HSD
As a general rule, I don't refer to my disabling conditions (HSD, POTS etc) as being ill or being sick. Why - when they can make me feel...
2 min read


My Mental Health 101 for World Mental Health Day - Kim Clayden
World Mental Health Day is a really big deal! The signs of stress and anxiety can be really hard to identify. What is even more difficult...
5 min read
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