In 2019 our #HMSAware campaign focused on the challenges of staying active with a hypermobility syndrome, exercising enough to stay...

The temperature is climbing here in the Northern hemisphere and for those that have PoTs in particular it means we will need to be a bit...

May 2023. This page is no longer regularly updated, many of the resources to which it points have closed (UKHSA monitoring pages and the...

By Sophie Harvey During these strange times, routine has been vital for me, both for pacing purposes and for my sanity. It helps give me...

Thank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping...

As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...

As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...

"After over 10 years suffering the excruciating pain and debilitating effects of bilateral plantar fascitis I was to finally meet a new...

The #BendyBasics arm of the 2016 #HMSAware campaign covered a number of areas, but this post, in particular, fits very nicely into this...

Hypermobility Syndromes Awareness Week is upon us and we're receiving some wonderful answers to our #2020Hindsight question - "If you'd...