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Kids & Teens 11/10/24
This week I thought I’d talk about mindset, mainly because it’s been brought to the forefront by a specialist physio that I’m seeing. A...
2 min read


Kids & Teens! 4/10/24
This week, I thought I’d share one of our recent learning experiences with you all. My eldest daughter dislocated her shoulder while at...
2 min read


Kids & Teens, with Lara 30th August 2024
As we prepare for the new school year, with both of my children transitioning into new Key Stages, we’ve encountered natural anxiety,...
2 min read


The neuroscience behind pain
A straight forward, laymans explanation of the neuroscience behind pain - both short term and long term (chronic) pain.
11 min read


On the Road, with Kids & Teens blogger Lara
Good evening! I’m back from holiday and thought I’d mix things up by posting on a Tuesday instead of the usual Friday—keeping you on your...
4 min read


PillowTalk!
"What's the best pillow for symptomatic hypermobility?" It's one of our most frequently asked questions (see also mattresses, but we'll...
2 min read


Kids & Teens with Lara - more on bladders!
I thought we could talk bladders again. I have mentioned before that hypermobility can cause a whole range of bladder problems, e.g....
2 min read


Celebrating ten years of service!
I cannot believe it has been 10 years!!!!!!!!! I started in the summer as the Peterborough support group leader and the December I...
2 min read


International Wheelchair Day 2024
Happy #InternationalWheelchairDay 🥳 I didn't know this was a thing until earlier today, but as a new active wheelchair user it felt...
2 min read


Dysautonomia in Hypermobility Syndromes
Dysautonomia is the medical term given to a disorder of the Autonomic Nervous System (ANS). The ANS is responsible for the...
7 min read


Participating in Research...
I was curious when the HMSA and EDS UK shared a call out for participants in a study to evaluate the effect of mindfulness meditation on...
1 min read


A teenagers perspective on pain
As a 14-year-old girl who suffers with hypermobility, I have found living with pain quite difficult at times, but I have found many ways...
3 min read


Dynamic fabric supports for more functional hypermobile joints
An overview of recent research on the use of dynamic orthosis in symptomatic hypermobility.
5 min read


Downloadable 'About hypermobility' info leaflet
A trifold leaflet giving an overview of hypermobility and how the Hypermobility Syndromes Association can help.
1 min read


What my pain feels like
Editors note: Anne, our Nottingham Local Group Leader suffered a bout of painsomnia recently, which led to this rather marvellous...
2 min read


HMSA’s Volunteer Week 2023 – Meet Wendy
Hi everyone, I’m Wendy and I am the Local Groups Coordinator. I look after all our wonderful Local Group Leaders and make sure they get...
2 min read


Long Covid - New research and early findings
Two of the HMSA's Clinical Advisors, Philip Bull and Alan Hakim, in partnership with Long Covid advocate, Gez Medinger have conducted...
1 min read


6 Things I wish I’d known about exercise and hypermobility - a patient's perspective
I have a hypermobility syndrome (probably hypermobility Ehlers Danlos syndrome). The Hypermobility Syndromes Association’s (HMSA) topic...
3 min read


About my first rendezvous with Tai Chi
Andrea Hebig shares her experience of discovering Tai Chi to help manage her hypermobility syndrome.
2 min read


A volunteer's story
I recently went to a genetics appointment for my 7-month-old little boy. When he was having his new born check, the doctor started asking...
2 min read
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