I recently went to a genetics appointment for my 7-month-old little boy. When he was having his new born check, the doctor started asking...

By Simmonds JV1, 2, 3, Ellen Ewer1, 4, De Wandele Inge5, Kazkaz Hanadi2, 6, Ninis Nelly7, Rowe Peter8, Tang Eudora1, 6 Exciting news: An...

In December 2008, my partner proposed to me, and I was absolutely over the moon. I started planning my dream wedding for that July, only...

By Jenny LL Csecs1,2†, Valeria Iodice3,4†, Charlotte L Rae5, Alice Brooke2, Rebecca Simmons2, Lisa Quadt1, 2, Georgia K Savage1, 2...

Originally posted some years ago, this important blog fell off the website during a move. We have seen a number of people beating...

HAPPY BRAIN CHEMICALS TO MAKE YOU FEEL GOOD! Your daily D.O.S.E The image below was designed by the lovely Kim, as a quick and easy...

Thank you to Reassured who have written this sponsored blog post which we hope may be of interest. As a result of the COVID-19 pandemic,...

Olivia D'Lima, best known for her role as Fenisha Khatri in the hit BBC series Casualty, has been nominated for the best newcomer...

Over the past few months, I’ve interacted with many different health care professionals – physiotherapists, rheumatologists,...

In 2019 our #HMSAware campaign focused on the challenges of staying active with a hypermobility syndrome, exercising enough to stay...

Dr Bull developed an interest in the Alexander technique when in training as a rheumatologist in the 1980s. He has taken lessons, and has...

A letter to a ‘loved one’ by Kirsty Turner, on understanding a Hypermobility Syndrome, such as hEDS or HSD Dear Loved One, As I have...

Many of our community are or have unpaid carers in their lives. 2020 has been a strange year for everyone, but with people...

The temperature is climbing here in the Northern hemisphere and for those that have PoTs in particular it means we will need to be a bit...

May 2023. This page is no longer regularly updated, many of the resources to which it points have closed (UKHSA monitoring pages and the...

By Sophie Harvey During these strange times, routine has been vital for me, both for pacing purposes and for my sanity. It helps give me...

Thank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping...

‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...

My EDS Story – Zoe Lewis I have Ehlers-Danlos type 7. Arthrochalasia, there are believed to be around 40 confirmed cases in the world...

As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...