Examining the Impact of Symptoms on Exercise Self-Efficacy in Adults with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorder.

Recruiting

We are inviting adults living with hypermobile Ehlers–Danlos Syndrome (hEDS) or Hypermobility Spectrum Disorder (HSD) to take part in a research study exploring how symptoms impact confidence to engage in exercise.

Living with HSD or hEDS can present daily challenges such as pain, fatigue, and fluctuating symptoms, which may affect how people feel about being active. This study aims to better understand these experiences and use them to inform future support and clinical understanding.

Taking part involves completing a short online questionnaire (approximately 15 minutes).

If you would like to share your experience, please follow the link below: https://winchesterpsychology.qualtrics.com/jfe/form/SV_39jX1DJVuC8hybI

Researcher:

Take Part

Claire Madin

HCPC, MCSP, Physiotherapist & NIHR-funded Student Researcher (Winchester University) BSc (Hons) Physiotherapy | BSc (Hons) Psychology

C.Madin.12@unimail.winchester.ac.uk

A rectangular poster with the heading “Have you been diagnosed with HSD or hEDS?” in large bold text. Below, colourful silhouettes of people stand side by side, each with small icons above their heads representing emotions, wellbeing, and physical activity. The poster states that the University of Winchester is running a study to understand how symptoms relate to confidence in taking part in and maintaining exercise. It explains that participation involves completing a 15‑minute online questionnaire and that eligible participants must be adults living in the UK with a diagnosis of HSD or hEDS. A QR code and a web link to the questionnaire are shown at the bottom, along with contact details for Claire Madin, MRes student. The poster encourages participation to support research in HSD/hEDS.