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Validating The Spider Tool

Recruiting

Validating The Spider Tool

WHAT IS THIS STUDY ABOUT?

  • A new questionnaire called The Spider has been developed to explore how symptomatic hypermobility affects your daily life.

  • The scores are plotted on a spiderweb so we can easily see what symptoms trouble you the most so we can consider all of these important issues in your care.

  • To be able to use the Spider routinely in your care we must check it measures what it is supposed to.

CAN I HELP?

  • We are looking for adolescents aged 13 to 18 years with:

  • Symptomatic hypermobility, but without another diagnosis like arthritis, neurological conditions, unrelated joint, muscle or heart problems.

  • But we also need teenagers without generalised joint hypermobility (eg your friends and siblings).

  • And be able to understand and communicate in English.

WHAT DO I NEED TO DO?

  • You will complete several questionnaires online taking 10-15 minutes in your own time, in your own home.

  • The questions will ask you about how symptoms like pain, tiredness, emotions, tummy problems etc impact your daily life.

  • Responses are completely anonymous.

INTERESTED?

Click the link below to complete the questionnaire.

https://redcap.link/the_spider

CONTACT

For further information please contact:

Victoria Busby: victoria.busby.20@ucl.ac.uk

Jane Simmonds: jane.Simmonds@ucl.ac.uk

Great Ormond Street Institute of Child Health, and UCL logo appear on a purple background. Ethical approval granted by UCL REC and Project ID24149/001 alo appear on the banner. Clipart images of an envelope and a computer appear, with the text included on this page. The poster is downloadable in pdf form from the button below.
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