Validating The Spider Tool
CLOSED
WHAT IS THIS STUDY ABOUT?
A new questionnaire called The Spider has been developed to explore how symptomatic hypermobility affects your daily life.
The scores are plotted on a spiderweb so we can easily see what symptoms trouble you the most so we can consider all of these important issues in your care.
To be able to use the Spider routinely in your care we must check it measures what it is supposed to.
CAN I HELP?
We are looking for adolescents aged 13 to 18 years with:
Symptomatic hypermobility, but without another diagnosis like arthritis, neurological conditions, unrelated joint, muscle or heart problems.
But we also need teenagers without generalised joint hypermobility (eg your friends and siblings).
And be able to understand and communicate in English.
WHAT DO I NEED TO DO?
You will complete several questionnaires online taking 10-15 minutes in your own time, in your own home.
The questions will ask you about how symptoms like pain, tiredness, emotions, tummy problems etc impact your daily life.
Responses are completely anonymous.
INTERESTED?
Click the link below to complete the questionnaire.
https://redcap.link/the_spider
CONTACT
For further information please contact:
Victoria Busby: victoria.busby.20@ucl.ac.uk
Jane Simmonds: jane.Simmonds@ucl.ac.uk
