top of page

An information pack including the 'Living with' guide, 5 trifold leaflets, and a 'what's the connection' poster, and a wristband for either EDS, HSD, Marfan or Pseudoxanthoma.


The 'Educators guide' can be added to this pack for an additional £4


Note: A 70% discount code for this item is a membership benefit for all new members (the coupon can only be used once per account). The coupon code is sent in the membership welcome email.

Information Pack

    bottom of page