Video: Swallowing and voice – Angela Hunter, EDS UK

A presentation on swallowing and voice, by Angela Hunter from EDS UK

This presentation is from the Management and Wellbeing conference 2017, which was run jointly by EDS UK and the HMSA.

Latest

HMSA Professional Masterclass online (Sept 2021)

The next HMSA Professional Education Masterclass event online this September 2021!
Medical Advisory Board
RECRUITING: Chronic Illness Survey Adventure.

RECRUITING: Everyone, looking for the symptom-stories of people with hypermobile EDS and hypermobility spectrum disorder, myalgic encephalomyelitis/chronic fatigue syndrome, Long COVID, POTS, MCAS, *and healthy allies*!
RECRUITING: Nutritional knowledge, attitudes and dietary behaviours

This study aims to look at relationships between nutritional knowledge, attitudes and dietary behaviour in individuals with HSD/hEDS. Additionally, since gastrointestinal symptoms and fatigue commonly coexist in individuals with HSD/hEDS, the study also aims to look for any associations between nutritional knowledge, attitudes and behaviour, and gastrointestinal symptoms and fatigue.

I Am a Zebra Hypermobility and Invisible Disabilities

Beautiful Video from Brogan Lawes, throwing light on the hidden daily struggle of living with EDS and symptomatic hypermobility, and the particular difficulties associated with having an invisible, and often unbelievable array of hidden symptoms and limitations.
Keeping Cool for the Summer

It's THAT time of year again. The days are getting longer and warmer again, pandemic or not. Staying on top of heat-related symptoms from the outset is an important part of self-management. Jo, our in house Occupational Therapist recorded these tips last year and they're still good!
HMSAware - Getting physical when fully flopped HMSActive

A fully flopped Hannah gets her wriggle on, and an #HMSActive series of videos from our Exercise and Rehab adviser Catherine, there's almost always something you can do, however small - but keep moving #HMSAware
Living Well with an HMS

A presentation by Hannah Ensor on living well with a hypermobility syndrome, as part of an HMSA masterclass.
Video: Overview of new classification of EDS

An overview of the new classification of EDS by Dr Hana Kazkaz
Video: Physiotherapy management of HSDs and hEDS – Dr Jane Simmonds

Dr Jane Simmonds talks about Physiotherapy management of HSDs and hEDS.
Video: Occupational therapy by Jo Southall

A presentation on the role of occupational therapy in hypermobility syndromes by Jo Southall (OT)
Video: Mindfulness – Dr Philip Bull

A presentation on mindfulness by Dr Philip Bull.
Video: Why nutrition is important, by Lisa Jamieson, Wingate Institute

A presentation on why nutrition is important, by Lisa Jamieson, Wingate Institute.
Video: Living with Mast Cell Action by Gawain Paling

A presentation on living with mast cell action disorder by Gawain Paling from Mast Cell Action