Video: Overview of new classification of EDS

Latest

RECRUITING:: Young adults’ experiences of seeking information about chronic pain using the internet and social media
RECRUITING: Investigating the Use of Wearable Technology to Monitor Postural Tachycardia Syndrome

This study is currently recruiting for a survey and a series of follow up interviews about opinions of and personal experiences with wearable technology.
RECRUITING: Does psychological flexibility moderate the efficacy of activity pacing in chronic pain?

A study into activity pacing for people over 16 and living with chronic or persistent pain.
Coronavirus Shielding: Advice for rejoining the world

An overview of some of the strategies that might help the transition from shielding into the new phase.

Keeping Cool for the Summer

It's THAT time of year again. The days are getting longer and warmer again, pandemic or not. Staying on top of heat-related symptoms from the outset is an important part of self-management. Jo, our in house Occupational Therapist recorded these tips last year and they're still good!
HMSAware - Rare Disease Day 2020, Zoe's story, Arthrochalasia

Zoe's story, she's one of our most truly rare EDS members, at the time of writing EDS Arthrochalasia cases numbered around 40, globally.
HMSAware - Getting physical when fully flopped HMSActive

A fully flopped Hannah gets her wriggle on, and an #HMSActive series of videos from our Exercise and Rehab adviser Catherine, there's almost always something you can do, however small - but keep moving #HMSAware
Living Well with an HMS

A presentation by Hannah Ensor on living well with a hypermobility syndrome, as part of an HMSA masterclass.
Hypermobile EDS

An overview of the diagnostic criteria for hypermobile Ehlers-Danlos syndrome (hEDS).
Vascular EDS

An overview of the typical features of vascular Ehlers-Danlos syndrome (vEDS)
Classical EDS

Typical features of classical Ehlers-Danlos syndrome (cEDS)
What is EDS

An overview of the different types of Ehlers-Danlos syndrome
Video: Physiotherapy management of HSDs and hEDS – Dr Jane Simmonds

Dr Jane Simmonds talks about Physiotherapy management of HSDs and hEDS.
Video: Occupational therapy by Jo Southall

A presentation on the role of occupational therapy in hypermobility syndromes by Jo Southall (OT)

Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.
"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.
What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.
HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware
Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.
Hormones and Hypermobility

How various hormones interact with hypermobility, including why symptoms may worsen around menstruation and things to consider regarding hormonal contraceptives.
HSD: Symptoms

A short overview of common symptoms of hypermobility spectrum disorder
What is the Beighton Score?

A brief summary of the beighton scale, it's uses and limitations.
Bowel problems

Common bowel problems in HSD and EDS
HSD: Diagnostic Criteria

The diagnostic criteria for hypermobility spectrum disorder (HSD)