Video: Overview of new classification of EDS

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Working Is Not Your Worth

HMSA Volunteer Sophie Harvey reminds us all that we are so much more than what we do for a living.
Professor Howard Bird

The HMSA sadly note the passing of our former board member, medical advisor, contributor, colleague and friend, Professor Howard Bird.
Rachel King (Trustee)
Communicating about hidden disabilities and symptoms (Webinar) April 2021

A 1 hour webinar on "Communicating about hidden disabilities and symptoms" with Hannah Ensor, exploring effective ways to improve communication with, and help gain understanding from, family and loved ones (who we may all be spending a LOT more time with for the immediate future!)

Keeping Cool for the Summer

It's THAT time of year again. The days are getting longer and warmer again, pandemic or not. Staying on top of heat-related symptoms from the outset is an important part of self-management. Jo, our in house Occupational Therapist recorded these tips last year and they're still good!
HMSAware - Rare Disease Day 2020, Zoe's story, Arthrochalasia

Zoe's story, she's one of our most truly rare EDS members, at the time of writing EDS Arthrochalasia cases numbered around 40, globally.
HMSAware - Getting physical when fully flopped HMSActive

A fully flopped Hannah gets her wriggle on, and an #HMSActive series of videos from our Exercise and Rehab adviser Catherine, there's almost always something you can do, however small - but keep moving #HMSAware
Living Well with an HMS

A presentation by Hannah Ensor on living well with a hypermobility syndrome, as part of an HMSA masterclass.
Hypermobile EDS

An overview of the diagnostic criteria for hypermobile Ehlers-Danlos syndrome (hEDS).
Vascular EDS

An overview of the typical features of vascular Ehlers-Danlos syndrome (vEDS)
Classical EDS

Typical features of classical Ehlers-Danlos syndrome (cEDS)
What is EDS

An overview of the different types of Ehlers-Danlos syndrome
Video: Physiotherapy management of HSDs and hEDS – Dr Jane Simmonds

Dr Jane Simmonds talks about Physiotherapy management of HSDs and hEDS.
Video: Occupational therapy by Jo Southall

A presentation on the role of occupational therapy in hypermobility syndromes by Jo Southall (OT)

Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.
"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.
HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware
What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.
Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.
HMSAware - HMSAnonQ, FAQ and the big question...

During the 2018 HMSAware campaign we took questions from the public and formulated them into an FAQ, with an Anonymous Question on the Wednesday evening, taking a look at that perennial question of whether or not hypermobility related health problems are rare. It is reproduced below, with an update taking into account more recent UK based research.
Victory for Kids and Teens Social Media Volunteer!

You may have noticed the lack of posts from me again the past few weeks - but I was off fighting a better fight. Kids & teen related of course! 😊
HSD: Diagnostic Criteria

The diagnostic criteria for hypermobility spectrum disorder (HSD)
Hormones and Hypermobility

How various hormones interact with hypermobility, including why symptoms may worsen around menstruation and things to consider regarding hormonal contraceptives.
HSD: Symptoms

A short overview of common symptoms of hypermobility spectrum disorder