Update: Early results are in....

This video presents the preliminary findings from the recent survey, The Hypermobile Voice, that asked adults with HSD or h-EDS about their experiences in speaking and singing. In total, 273 responses were received from participants across the globe, most of whom were based in English-speaking countries. The PowerPoint video uses graphs and charts to show the main characteristics of the participants, and the prevalence and types of voice difficulty and ability in participants. It also shows the average scores and range of scores on the voice tasks, the 's/z ratio' and 'Maximum Phonation Time': these tasks asked participants to sustain the sounds /s/, /z/, /a/, and /i/ for as long as they could, and are commonly used as indicators of how the vocal folds function. A number of slides show quotations from participants about their experiences in singing, good and bad. Overall, the results suggest that voice difficulties may commonly ocur in people with hypermobility spectrum disorders and h-EDS. However, more detailed analysis is needed in order to understand how voice difficulties might relate to factors such as Beighton score, age, associated health and medical conditions, etc.. The detailed analysis will be shared when finished, next year.  Thank you to all who took part, and please contact me if you need further information about the study. 

Dr. Tracy Jeffery, MSc., PGCE, PhD, fHEA  [email protected]  

December 2020: NOW CLOSED, THANK YOU!

Do you have hypermobility, hypermobility spectrum disorder, or hypermobile Ehlers-Danlos syndrome? Would you like to take part in a research survey about using your voice to speak, sing, or both?

Bishop Grosseteste University is conducting a research survey that seeks to understand voice in people with hypermobility, HSD, or hEDS. They are interested in learning about how your voice usually works when speaking, and about your experiences when singing or learning to sing, if relevant. To participate in this survey you must be aged 16 or over.

Your participation in the study would involve the completion of an online survey that asks for some basic information about you, your hypermobility, and how your voice works. Most questions require a simple tick-box answer, but you can give more information to some questions if you wish.

To learn more and participate in this survey click the link below:


Dr. Tracy Jeffery - Senior Lecturer in Special Educational Needs, Disability and Inclusion, [email protected]