Obstetric and Gynecologic Experiences of Women with Ehlers Danlos Syndrome

Most patients diagnosed with EDS are women, but little is known about how the disease can affect aspects of women's' health including fertility, pregnancy complications, menstrual concerns, pelvic floor issues and pelvic pain. 

We are looking for women with EDS to complete an online questionnaire (one 25-40 minute session). 

For more info and to complete the questionnaire go to tinyurl.com/EDSstudy

If you have any questions about the study, please contact the investigators: Dr Colleen McDermott ([email protected]) or Dr Olga Kciuk ([email protected]). The study is a joint project of Mount Sinai hospital and the University of Toronto and has been approved by the MSH Research Ethics Board.