Recruiting: Nutritional knowledge, attitudes and dietary behaviours amongst individuals with Hypermobility Spectrum Disorder and hypermobile Ehlers-Danlos Syndrome, and associations with co-morbid gastrointestinal symptoms and fatigue.

Nutritional knowledge, attitudes and dietary behaviours amongst individuals with Hypermobility Spectrum Disorder and hypermobile Ehlers-Danlos Syndrome, and associations with co-morbid gastrointestinal symptoms and fatigue.

Nikki Paiba and Miranda Harris

What is the purpose of the research?

This study aims to look at relationships between nutritional knowledge, attitudes and dietary behaviour in individuals with HSD/hEDS. Additionally, since gastrointestinal symptoms and fatigue commonly coexist in individuals with HSD/hEDS, the study also aims to look for any associations between nutritional knowledge, attitudes and behaviour, and gastrointestinal symptoms and fatigue.

Invitation to take part in this survey

We are looking for individuals who:

·         Are resident in the UK.

·         Are aged 18 or over.

·         Have received a medical diagnosis of Hypermobility Spectrum Disorder (HSD) or hypermobile Ehlers-Danlos Syndrome (hEDS), or a diagnosis of Joint Hypermobility Syndrome (JHS), Ehlers-Danlos Syndrome - hypermobile type or type 3 or Symptomatic Hypermobility prior to the updated EDS International Classification in 2017.

·         Are not presently suffering from long Covid.

Your participation will help us to better understand the levels of nutritional knowledge, attitudes and dietary habits amongst people with HSD/hEDS, and whether there are any associations between any of these factors, gastrointestinal symptoms and fatigue. The data we collect may also lead to an improved awareness of the role of nutrition within the overall management of HSD/hEDS and its coexisting conditions.

What will happen if I agree to take part?

If you agree to take part you will be asked to complete an anonymous online questionnaire, which should take approximately 15-20 minutes.

Ethics

Ethical approval has been granted for this study.

For more information and to access the questionnaire please click on the following link:

https://ucw.onlinesurveys.ac.uk/nutritional-knowledge-attitudes-and-dietary-behaviours-in

 

Should you have any queries about this study please use the contact details in the Participant Information Sheet contained in the link above.