ON HOLD (Covid19) - Children 5-11 with hypermobility syndromes (Billings)

Sheila Billings MSc MCSP, conducting a PhD with the University of Hertfordshire, is investigating ”The impact of hypermobile EDS and related physiotherapy from the perspectives of primary school children aged 5-11, their parents and paediatric physiotherapists”. Recruitment for this study has been suspebded due to the Covid19 emergency and we hope to reopen in 2021.

She proposes to give children a camera with which to document their daily lives with hEDS/gHSD, followed by a chat about the pictures they've taken. She'll also be speaking to Parents/Guardians about caring for a Primary School child.

For more information about the study, or to discuss participation, please contact her on [email protected]

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RECRUITING:: Young adults’ experiences of seeking information about chronic pain using the internet and social media
RECRUITING: Investigating the Use of Wearable Technology to Monitor Postural Tachycardia Syndrome

This study is currently recruiting for a survey and a series of follow up interviews about opinions of and personal experiences with wearable technology.
RECRUITING: Does psychological flexibility moderate the efficacy of activity pacing in chronic pain?

A study into activity pacing for people over 16 and living with chronic or persistent pain.
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CLOSED: A Qualitative study exploring perceptions and experiences of Exercise, Physical Activity and Sport for Males with Hypermobility Spectrum Disorder (HSD) and Hypermobile Ehlers Danlos Syndrome (hEDS)

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Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.
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Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.
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