Fundraisers | Hypermobility Syndromes Association (HMSA)

Hannah Ensor

Hannah Turner

I am fundraising to help provide resources and support for people with hypermobility syndromes, their families, and medical professionals.

[Updated for Covid19 Lockdown] Definitive Deca Triathlon

Keith Diaper

My wife has EDS and after 18 months of misdiagnosis we came across the HMSA and they have supported not only Pippa but us a family. We want to support them to help others with any hypermobile condition.

Latest

Online relaxation session

A weekly live online relaxation session for HMSA members, led by Psychotherapist Kim Clayden

RECRUITING: A Qualitative study exploring perceptions and experiences of Exercise, Physical Activity and Sport for Males with Hypermobility Spectrum Disorder (HSD) and Hypermobile Ehlers Danlos Syndrome (hEDS)

A Qualitative study exploring perceptions and experiences of Exercise, Physical Activity and Sport for Males with Hypermobility Spectrum Disorder (HSD) and Hypermobile Ehlers Danlos Syndrome (hEDS)

Communicating about hidden disabilities and symptoms (Webinar)

A 1 hour webinar on "Communicating about hidden disabilities and symptoms" with Hannah Ensor, exploring effective ways to improve communication with, and help gain understanding from, family and loved ones (who we may all be spending a LOT more time with for the immediate future!) (HSMA members can email [email protected] for a free ticket, subject to availability)

HMSA Hero Keith Diaper has adapted his latest challenge for Covid compliance....

Our HMSA Hero, Keith Diaper recently had to reluctantly call off his last massive challenge for the summer due to shielding restrictions, but he bounces back fast and has instead converted the challenge, so if you can - by all means join in with his efforts - or if you're able, please donate to his fundraiser.

Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.

"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.

HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware

Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.

What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.

HMSAware - HMSAnonQ, FAQ and the big question...

During the 2018 HMSAware campaign we took questions from the public and formulated them into an FAQ, with an Anonymous Question on the Wednesday evening, taking a look at that perennial question of whether or not hypermobility related health problems are rare. It is reproduced below, with an update taking into account more recent UK based research.