Skip over main navigation
  • Sign up
  • Log in
  • Basket: (0 items)
Hypermobility Syndromes Association (HMSA)
  • Search
  • Facebook
  • Twitter
  • YouTube
Shop Donate
Menu
  • Who we are
    • About the HMSA
    • Our Board of Trustees
  • What we do
    • Support and Advice
    • Information (and the Information Standard)
    • Education
    • Research
    • Awareness
  • Hypermobility
    • What are hypermobility syndromes?
    • Types of HMS
      • Hypermobility Spectrum Disorder
      • Ehlers Danlos Syndromes
      • Marfan Syndrome
      • Osteogenesis Imperfecta
      • Stickler syndrome
      • Pseudoxanthoma Elasticum
    • Living with an HMS
    • Hypermobility FAQs
    • Kids Zone
    • Videos
  • Professionals
    • The Kent Model
    • Hypermobility Disorders – An Update for Clinicians
    • Professional Membership
  • Membership
    • Standard Membership
    • Family Membership
    • Professional Membership
    • Our Local Groups
    • Log in
  • Get help
    • Helpline
    • Other sources of help
  • Get involved
    • Donate
    • Businesses which support the HMSA
    • Our Fundraisers
    • Fundraise
      • Ways to fundraise
      • Set up a fundraising page
      • Fundraising events
      • Create a fundraising event
    • Volunteer
      • Volunteer Vacancies
      • Apply to volunteer
    • Submit a blog post
  • Latest
    • News
    • Blogs
    • Events
  • Admin
    • Log in
  • Basket: (0 items)
  1. Get help
  2. Other sources of help

Other sources of help

Here are some other organisations which you may find useful:

PoTS UK (https://www.potsuk.org/) Providing information and support about postural orthostatic tachycardia syndrome (PoTS) for sufferers, medical professionals, family, and friends

Pain Concern (http://painconcern.org.uk/) Work to improve the lives of people living with pain and those who care for them.

Ehlers-Danlos Support UK (https://www.ehlers-danlos.org/) 

Brittle Bone Society (https://brittlebone.org/) supports people with Osteogenesis imperfecta

Stickler syndrome UK (https://stickler.org.uk/)  is a non-profit organisation that provides information for families, healthcare and medical professionals affected by or caring for people with Stickler Syndrome.

The Arthritis and Musculoskeletal Alliance (ARMA) (http://arma.uk.net/) is the umbrella body for the arthritis and musculoskeletal community in the UK.

Pain UK (https://painuk.org/) an alliance of charities providing support and help for those living with pain. Pain management, healthcare advice. tips and resources available.

The Ehlers-Danlos Society (https://www.ehlers-danlos.com/) Formerly the EDNF,  support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population. They're developing a Global Registry of patients with EDS or HSD


Published: 7th December, 2018

Updated: 16th September, 2019

Author:

Share this page
  • Email
  • Facebook
  • Twitter

Latest

  • Rachel King (Trustee)

    Rachel King (Trustee)

  • Communicating about hidden disabilities and symptoms (Webinar) April 2021

    Communicating about hidden disabilities and symptoms (Webinar) April 2021

    A 1 hour webinar on "Communicating about hidden disabilities and symptoms" with Hannah Ensor, exploring effective ways to improve communication with, and help gain understanding from, family and loved ones (who we may all be spending a LOT more time with for the immediate future!)

  • Help me change the lives of hypermobile people!

    Help me change the lives of hypermobile people!

    Covid 19 changed all our plans in 2020, for me it meant I couldn't do my last large challenge. I have come up with a new challenge that fits around family restraints and is Covid proof.

  • 2021 HypnOT Episode 5 - Weight management

    2021 HypnOT Episode 5 - Weight management

    Start 2021 as you mean to go on... #HypnOT - a series of five live broadcasts introducing, or gently reminding our members about some of the strategies and skills we can all use to help manage our condition.

Most read

  • What are hypermobility syndromes?

    Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.

  • Response to BSR statement March 4th 2020

    Response to BSR statement March 4th 2020

    We are aware of the BSR statement and have prepared a response detailing our position on the subject.

  • "New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

    This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.

  • HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

    HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

    There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware

  • Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

    Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

    Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.

  • Hormones and Hypermobility

    Hormones and Hypermobility

    How various hormones interact with hypermobility, including why symptoms may worsen around menstruation and things to consider regarding hormonal contraceptives.

  • HSD: Symptoms

    HSD: Symptoms

    A short overview of common symptoms of hypermobility spectrum disorder

  • HSD: Diagnostic Criteria

    HSD: Diagnostic Criteria

    The diagnostic criteria for hypermobility spectrum disorder (HSD)

  • Bowel problems

    Bowel problems

    Common bowel problems in HSD and EDS

  • What is the Beighton Score?

    A brief summary of the beighton scale, it's uses and limitations.

Tag cloud

2017conference child EDS EDSPage hEDS HMS HSD hypermobile ehlers danlos hypermobility hypermobility spectrum disorder Kent Model kid Marfan marfan syndrome MarfanPage Trustee

Sign up for our newsletter

Please enter your first name
Please enter your last name
Please enter your email address Please enter a valid email address (e.g. [email protected])


This is a general update enews - not the members-only enews which is a member benefit.

For more information on how your data is stored and used, please see our Privacy Policy.

Find us

Registered Office (Postal Address)
49 Greek Street
Soho
London
W1D 4EG

Contact us
+44 (0)33 3011 6388 (Helpline)
[email protected]

Links

  • Sitemap
  • Accessibility
  • Terms & Conditions
  • Privacy Policy

Follow us

  • Facebook
  • Twitter
  • Youtube

Registered as Charity number 1186735