Other sources of help

Here are some other organisations which you may find useful:

PoTS UK (https://www.potsuk.org/) Providing information and support about postural orthostatic tachycardia syndrome (PoTS) for sufferers, medical professionals, family, and friends

Pain Concern (http://painconcern.org.uk/) Work to improve the lives of people living with pain and those who care for them.

Ehlers-Danlos Support UK (https://www.ehlers-danlos.org/)

Brittle Bone Society (https://brittlebone.org/) supports people with Osteogenesis imperfecta

Stickler syndrome UK (https://stickler.org.uk/) is a non-profit organisation that provides information for families, healthcare and medical professionals affected by or caring for people with Stickler Syndrome.

The Arthritis and Musculoskeletal Alliance (ARMA) (http://arma.uk.net/) is the umbrella body for the arthritis and musculoskeletal community in the UK.

Pain UK (https://painuk.org/) an alliance of charities providing support and help for those living with pain. Pain management, healthcare advice. tips and resources available.

The Ehlers-Danlos Society (https://www.ehlers-danlos.com/) Formerly the EDNF, support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population. They're developing a Global Registry of patients with EDS or HSD

Latest

My Mental Health 101 for World Mental Health Day - Kim Clayden

World Mental Health Day is a really big deal! The signs of stress and anxiety can be really hard to identify. What is even more difficult is knowing which symptoms you have are stress-related or hypermobility syndrome related too! Do you ever notice that when you are more stressed than usual, just how negative your thoughts can be? Did you know, EVERY negative thought you have is converted into anxiety?
Fibromyalgia and Hypermobility with Dr Philip Bull

Run by the One Hospital Ashford, this informative evening features HMSA trustee and Medical Advisor Dr Philip Bull, who will be there to answer questions and provide information.
Living Well with an HMS

A presentation by Hannah Ensor on living well with a hypermobility syndrome, as part of an HMSA masterclass.
New website announcement

The new HMSA Charity website is launching on Moday the 16th September 2019! This new website is something that a lot of people have been working on in the background for quite some time now and it is much more user friendly than the old one. Here at the HMSA Charity we are absolutely bursting at the seams with excitement.

What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.
My Mental Health 101 for World Mental Health Day - Kim Clayden

World Mental Health Day is a really big deal! The signs of stress and anxiety can be really hard to identify. What is even more difficult is knowing which symptoms you have are stress-related or hypermobility syndrome related too! Do you ever notice that when you are more stressed than usual, just how negative your thoughts can be? Did you know, EVERY negative thought you have is converted into anxiety?
Living Well with an HMS

A presentation by Hannah Ensor on living well with a hypermobility syndrome, as part of an HMSA masterclass.
Accessibility

An overview of our site accessibility.
Thank you for changing my life

Podiatrist, Julie, was able diagnose her whole family after coming to one of our talks.
Fibromyalgia and Hypermobility with Dr Philip Bull

Run by the One Hospital Ashford, this informative evening features HMSA trustee and Medical Advisor Dr Philip Bull, who will be there to answer questions and provide information.
Donate to the HMSA

Every donation helps us to support individuals with hypermobility syndromes (including HSD, EDS, Marfan syndrome, PXE, stickler syndrome and more) and their families, and to educate the medical professionals involved in their care.
Become a member

Become an HMSA Member - Individual, family, professional, and international memberships available.
Online support groups

Our Facebook groups for members, application instructions, how to become a member and find your local group.
Kent Model: Aims

The aims of the Kent Model.