Voice, swallowing and acid reflux in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

Hannah Williams and Dr Shashi Hirani

City University, University of London

The purpose of this research is to explore the frequency and severity of voice difficulties, swallowing difficulties and acid reflux in people with Ehlers-Danlos Syndrome (EDS) and Hypermobile Spectrum Disorder (HSD). The study will explore whether there is a relationship between types of EDS/HSD and symptoms in the throat.

What does it involve?

To participate in this study you will be asked to complete a survey, which takes approximately 15-30 minutes to complete. The survey does not need to be completed in one sitting.

Who can take part?

Do you have EDS or HSD? Would you be interested in participating in a survey researching voice, swallowing and reflux?

This research is looking for individuals who:

  • Are over 18 years old
  • Are living with EDS or HSD
  • In this second phase of recruitment, the researchers would particularly welcome responses from people with rarer types of EDS (i.e. not hypermobile EDS).

To find out more and decide whether you would like to complete the research survey click here.


Start date: 05/02/21             - Finish date: 30/11/21

Should you have any queries about this study please use the details below:

Hannah Williams
[email protected]

Dr Shashi Hirani
[email protected]


This study has been reviewed by, and received ethics approval 
from the Health Services Research and Management Proportionate Review Committee at City, University of London.