CLOSED: The Lived Experience of Joint Hypermobility Syndrome in Dancers: A Phenomenological Study

This study is now closed to new participants, many thanks all who responded.

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The Lived Experience of Joint Hypermobility Syndrome in Dancers: A Phenomenological Study, in association with the University of Nottingham's Division of Physiotherapy and Rehabilitative Services.

Researcher Ellie Mayhew is seeking JHS individuals, aged 18+ who have danced at a professional or competitive level seeking to improve the experiences of dancers in the future.

Participation involves a one hour virtual interview contact the researcher for more information on [email protected]

Latest

#HMSALiveOT March 2021

Bendy Occupational Therapist Jo Southall can't magic all problems away, but she has some super tips on stripping out some of the tough parts and has a range of ingenious tips to avoid some of the others! Join us at 7pm GMT Thursday 18/3/21
RECRUITING: Voice, swallowing and acid reflux in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

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When it doesn’t go to EHCP

When all does not go according to the EHCP and the stress piles up...

RECRUITING: Voice, swallowing and acid reflux in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

Voice, swallowing and acid reflux in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Hannah Williams and Dr Shashi Hirani, City University, University of London The purpose of this research is to explore the frequency and severity of voice difficulties, swallowing difficulties and acid reflux in people with Ehlers-Danlos Syndrome (EDS) and Hypermobile Spectrum Disorder (HSD). The study will explore whether there is a relationship between types of EDS/HSD and symptoms in the
RECRUITING: How Pain-Related Beliefs Affect Our Expectations

RECRUITING: The University of Liverpool is looking for participants who: Have chronic pain OR are pain-free, are over 18 and understand English to take part in an online study.
RECRUITING: Exploring the knowledge, assessment and management of symptomatic hypermobility in adults among allied health professionals in UK. A national survey using the Modified HHQ

Recruiting Allied Health Professionals - This is not a patient survey, please do not apply unless you're in the target group of professionals working with adults with hypermobility syndromes.
CLOSED: The hypermobile voice

Survey based investigation of voice in people with symptomatic hypermobility.
CLOSED: Obstetric and Gynecologic Experiences of Women with Ehlers Danlos Syndrome

CLOSED: Survey study from the University of Toronto for people with Gynaecological or Obstetric experiences who have EDS.
CLOSED: Young adults’ experiences of seeking information about chronic pain using the internet and social media

This study is no longer recruiting participants, thank you.
CLOSED: Investigating the Use of Wearable Technology to Monitor Postural Tachycardia Syndrome

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RECRUITING: Does psychological flexibility moderate the efficacy of activity pacing in chronic pain?

A study into activity pacing for people over 16 and living with chronic or persistent pain.
CLOSED: Have you travelled for Cranial/Spinal Surgery outside the UK?

CLOSED: EDS/HSD UK residents who've had spinal/cranial surgery outside the UK.
CLOSED: A Qualitative study exploring perceptions and experiences of Exercise, Physical Activity and Sport for Males with Hypermobility Spectrum Disorder (HSD) and Hypermobile Ehlers Danlos Syndrome (hEDS)

THIS STUDY IS NOW CLOSED A Qualitative study exploring perceptions and experiences of Exercise, Physical Activity and Sport for Males with Hypermobility Spectrum Disorder (HSD) and Hypermobile Ehlers Danlos Syndrome (hEDS)

Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.
"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.
RECRUITING: How Pain-Related Beliefs Affect Our Expectations

RECRUITING: The University of Liverpool is looking for participants who: Have chronic pain OR are pain-free, are over 18 and understand English to take part in an online study.
HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware
What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.
Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.
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During the 2018 HMSAware campaign we took questions from the public and formulated them into an FAQ, with an Anonymous Question on the Wednesday evening, taking a look at that perennial question of whether or not hypermobility related health problems are rare. It is reproduced below, with an update taking into account more recent UK based research.
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Hormones and Hypermobility

How various hormones interact with hypermobility, including why symptoms may worsen around menstruation and things to consider regarding hormonal contraceptives.
The HMSA is to become a Charitable Incorporated Organisation