Events

#SelfCare Sunday

#SelfCareSunday #CraftHour - A regular online slot on social media, open to everyone, where we chat about both self-care and crafts. Read more

Live relaxation sessions Online

A weekly live online relaxation session for HMSA members, led by Hypno/Psychotherapist Kim Clayden Read more

Start 2021 as you mean to go on... #HypnOT - a series of five live broadcasts introducing, or gently reminding our members about some of the strategies and skills we can all use to help manage our condition. Read more

2021 HypnOT Episode 2 - Anxiety & Mental Health

2021 HypnOT Episode 3 - Pain management

2021 HypnOT Episode 4 - Sleep management

2021 HypnOT Episode 5 - Weight management

#HMSALiveOT March 2021

Bendy Occupational Therapist Jo Southall can't magic all problems away, but she has some super tips on stripping out some of the tough parts and has a range of ingenious tips to avoid some of the others! Join us at 7pm GMT Thursday 18/3/21 Read more

Communicating about hidden disabilities and symptoms (Webinar) April 2021

A 1 hour webinar on "Communicating about hidden disabilities and symptoms" with Hannah Ensor, exploring effective ways to improve communication with, and help gain understanding from, family and loved ones (who we may all be spending a LOT more time with for the immediate future!) Read more

Latest

#HMSALiveOT March 2021

Bendy Occupational Therapist Jo Southall can't magic all problems away, but she has some super tips on stripping out some of the tough parts and has a range of ingenious tips to avoid some of the others! Join us at 7pm GMT Thursday 18/3/21
RECRUITING: Voice, swallowing and acid reflux in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

Voice, swallowing and acid reflux in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Hannah Williams and Dr Shashi Hirani, City University, University of London The purpose of this research is to explore the frequency and severity of voice difficulties, swallowing difficulties and acid reflux in people with Ehlers-Danlos Syndrome (EDS) and Hypermobile Spectrum Disorder (HSD). The study will explore whether there is a relationship between types of EDS/HSD and symptoms in the
When it doesn’t go according to EHCP

When you have one of those weeks and what’s on paper doesn’t make it into the classroom...
When it doesn’t go to EHCP

When all does not go according to the EHCP and the stress piles up...

Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.
"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.
RECRUITING: How Pain-Related Beliefs Affect Our Expectations

RECRUITING: The University of Liverpool is looking for participants who: Have chronic pain OR are pain-free, are over 18 and understand English to take part in an online study.
What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.
HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware
Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.
HMSAware - HMSAnonQ, FAQ and the big question...

During the 2018 HMSAware campaign we took questions from the public and formulated them into an FAQ, with an Anonymous Question on the Wednesday evening, taking a look at that perennial question of whether or not hypermobility related health problems are rare. It is reproduced below, with an update taking into account more recent UK based research.
Hormones and Hypermobility

How various hormones interact with hypermobility, including why symptoms may worsen around menstruation and things to consider regarding hormonal contraceptives.
Victory for Kids and Teens Social Media Volunteer!

You may have noticed the lack of posts from me again the past few weeks - but I was off fighting a better fight. Kids & teen related of course! 😊
HSD: Diagnostic Criteria

The diagnostic criteria for hypermobility spectrum disorder (HSD)