Events | Hypermobility Syndromes Association (HMSA)

#SelfCare Sunday

#SelfCareSunday #CraftHour - A regular online slot on social media, open to everyone, where we chat about both self-care and crafts. Read more

Fibromyalgia & Hypermobility Management Masterclass for Health Professionals

*Postponed due to the pandemic. New Dates will be advertised when known* A masterclass that covers hypermobility and the relationship with fibromyalgia and medically unexplained symptoms, with a focus on condition management. Read more

Keeping Calm in Scary Times, episode 1

First of three online sessions with Dr Philip Bull and Renee van der Vloodt aimed at managing anxiety during the pandemic crisis. Free to members, registration link to each event. Read more

Keeping Calm in Scary Times, episode 2

Episode Two of our "Keeping Calm in Scary Times" series, this episode focused on increasing resilience using mindfulness (or the attention muscle). Read more

Keeping Calm in Scary Times, episode 3

Episode three of three sessions with Dr Philip Bull and Renee van der Vloodt aimed at managing anxiety during the pandemic crisis. Free to members, registration link below. Read more

Online Live relaxation sessions

A weekly live online relaxation session for HMSA members, led by Hypno/Psychotherapist Kim Clayden Read more

Latest

How do you get through mundane tasks? By Sophie Harvey

Help me change the lives of hypermobile people!

I am fundraising to help provide resources and support for people with hypermobility syndromes, their families, and medical professionals.

Social Media Support Team

2 roles: scheduling posts in Buffer, and creating images in CANVA.

250 Mile run during 2020

I am going to run a total distance of 250 miles before the end of 2020, to provide support & raise awareness of Ehlers-Danlos & other Hypermobility Syndromes.

Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.

"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.

HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware

Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.

What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.

HMSAware - HMSAnonQ, FAQ and the big question...

During the 2018 HMSAware campaign we took questions from the public and formulated them into an FAQ, with an Anonymous Question on the Wednesday evening, taking a look at that perennial question of whether or not hypermobility related health problems are rare. It is reproduced below, with an update taking into account more recent UK based research.