Fundraising events

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Working Is Not Your Worth

HMSA Volunteer Sophie Harvey reminds us all that we are so much more than what we do for a living.
Professor Howard Bird

The HMSA sadly note the passing of our former board member, medical advisor, contributor, colleague and friend, Professor Howard Bird.
Rachel King (Trustee)
Communicating about hidden disabilities and symptoms (Webinar) April 2021

A 1 hour webinar on "Communicating about hidden disabilities and symptoms" with Hannah Ensor, exploring effective ways to improve communication with, and help gain understanding from, family and loved ones (who we may all be spending a LOT more time with for the immediate future!)

Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.
"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.
What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.
HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware
Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.
Dental health

How hypermobility syndromes can affect the teeth and mouth, and how to maximise dental health.
HMSAware - HMSAnonQ, FAQ and the big question...

During the 2018 HMSAware campaign we took questions from the public and formulated them into an FAQ, with an Anonymous Question on the Wednesday evening, taking a look at that perennial question of whether or not hypermobility related health problems are rare. It is reproduced below, with an update taking into account more recent UK based research.
HSD: Symptoms

A short overview of common symptoms of hypermobility spectrum disorder
Skin in EDS and HSD

How the skin can be affected in the Ehlers-Danlos syndromes and hypermobility spectrum disorders
Hormones and Hypermobility

How various hormones interact with hypermobility, including why symptoms may worsen around menstruation and things to consider regarding hormonal contraceptives.