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RECRUITING: Exploring the knowledge, assessment and management of symptomatic hypermobility in adults among allied health professionals in UK. A national survey using the Modified HHQ

Recruiting Allied Health Professionals - This is not a patient survey, please do not apply unless you're in the target group of professionals working with adults with hypermobility syndromes.
RECRUITING: The Lived Experience of Joint Hypermobility Syndrome in Dancers: A Phenomenological Study

18+, JHS in competitive/professional dancers.
Recruiting: The hypermobile voice

Survey based investigation of voice in people with symptomatic hypermobility.
RECRUITING: Obstetric and Gynecologic Experiences of Women with Ehlers Danlos Syndrome

Survey study from the University of Toronto for people with Gynaecological or Obstetric experiences who have EDS.

Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.
"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.
What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.
HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware
Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.
Hormones and Hypermobility

How various hormones interact with hypermobility, including why symptoms may worsen around menstruation and things to consider regarding hormonal contraceptives.
What is the Beighton Score?

A brief summary of the beighton scale, it's uses and limitations.
HSD: Symptoms

A short overview of common symptoms of hypermobility spectrum disorder
HSD: Diagnostic Criteria

The diagnostic criteria for hypermobility spectrum disorder (HSD)
Skin in EDS and HSD

How the skin can be affected in the Ehlers-Danlos syndromes and hypermobility spectrum disorders