The HMSA doesn't fund research directly but we're often asked to share open projects with our members and followers in order to help the researchers recruit participants.
This study is open to people caring for childbearing people with an hEDS or HSD diagnosis. Midwives, Doctors, Obstetricians, Sonographers, Gynaecologists, Physiotherapists and anyone else providing medical care to people during or after pregnancy is eligible.
This study is inviting Primary School children aged 5-11 years to tell me what it is like living with a hypermobile Ehlers Danlos Syndrome (hEDS) or generalised Hypermobility Spectrum Disorder (gHSD). I also want to talk to their parent /guardian to learn what it is like looking after a child with hEDS or gHSD diagnosis.
This survey is recruiting people with a Hypermobility Spectrum disorder, or a historic diagnosis (Joint Hypermobility syndrome, Benign Joint Hypermobility syndrome, Hypermobility syndrome etc) who have given birth since 2007.