The HMSA doesn't fund research directly but we're often asked to share open projects with our members and followers in order to help the researchers recruit participants.
CLOSED: Survey study from the University of Toronto for people with Gynaecological or Obstetric experiences who have EDS. Read more
This project is no longer recruiting. 18+, JHS in competitive/professional dancers. Read more
This study is no longer recruiting participants, thank you. Read more
This study is inviting Primary School children aged 5-11 years to tell me what it is like living with a hypermobile Ehlers Danlos Syndrome (hEDS) or generalised Hypermobility Spectrum Disorder (gHSD). I also want to talk to their parent /guardian to learn what it is like looking after a child with hEDS or gHSD diagnosis. Read more
Survey based investigation of voice in people with symptomatic hypermobility. Read more
This study is now closed. A survey and a series of follow up interviews about opinions of and personal experiences with wearable technology. Read more
Recruiting Allied Health Professionals - This is not a patient survey, please do not apply unless you're in the target group of professionals working with adults with hypermobility syndromes. Read more
A study into activity pacing for people over 16 and living with chronic or persistent pain. Read more
CLOSED: EDS/HSD UK residents who've had spinal/cranial surgery outside the UK. Read more
This study is open to people caring for childbearing people with an hEDS or HSD diagnosis. Midwives, Doctors, Obstetricians, Sonographers, Gynaecologists, Physiotherapists and anyone else providing medical care to people during or after pregnancy is eligible. Read more
THIS STUDY IS NOW CLOSED A Qualitative study exploring perceptions and experiences of Exercise, Physical Activity and Sport for Males with Hypermobility Spectrum Disorder (HSD) and Hypermobile Ehlers Danlos Syndrome (hEDS) Read more
Voice, swallowing and acid reflux in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Hannah Williams and Dr Shashi Hirani, City University, University of London The purpose of this research is to explore the frequency and severity of voice difficulties, swallowing difficulties and acid reflux in people with Ehlers-Danlos Syndrome (EDS) and Hypermobile Spectrum Disorder (HSD). The study will explore whether there is a relationship between types of EDS/HSD and symptoms in the Read more
RECRUITING: The University of Liverpool is looking for participants who: Have chronic pain OR are pain-free, are over 18 and understand English to take part in an online study. Read more