Patrons

We're thrilled to have the following Patrons.

Norman Lamb (Patron)

Norman Lamb, Liberal Democrat MP and Patron of the HMSA Read more

Latest

RECRUITING: Have you travelled for Cranial/Spinal Surgery outside the UK?

Recruiting: EDS/HSD UK residents who've had spinal/cranial surgery outside the UK.
Virtual Quiz

Virtual Quiz! Do your thing!
Pitch Up for the HMSA

Lockdown staycation?
How the HMSA's Webinars have helped me

Thank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping myself as well.

Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.
"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.
HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware
Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.
What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.
HSD: Symptoms

A short overview of common symptoms of hypermobility spectrum disorder
HSD: Diagnostic Criteria

The diagnostic criteria for hypermobility spectrum disorder (HSD)
HMSAware - HMSAnonQ, FAQ and the big question...

During the 2018 HMSAware campaign we took questions from the public and formulated them into an FAQ, with an Anonymous Question on the Wednesday evening, taking a look at that perennial question of whether or not hypermobility related health problems are rare. It is reproduced below, with an update taking into account more recent UK based research.
Hormones and Hypermobility

How various hormones interact with hypermobility, including why symptoms may worsen around menstruation and things to consider regarding hormonal contraceptives.
Victory for Kids and Teens Social Media Volunteer!

You may have noticed the lack of posts from me again the past few weeks - but I was off fighting a better fight. Kids & teen related of course! 😊