Patrons

We're thrilled to have the following Patrons.

Norman Lamb (Patron)

Norman Lamb, Liberal Democrat MP and Patron of the HMSA Read more

Latest

How do you get through mundane tasks? By Sophie Harvey
Help me change the lives of hypermobile people!

I am fundraising to help provide resources and support for people with hypermobility syndromes, their families, and medical professionals.
Social Media Support Team

2 roles: scheduling posts in Buffer, and creating images in CANVA.
250 Mile run during 2020

I am going to run a total distance of 250 miles before the end of 2020, to provide support & raise awareness of Ehlers-Danlos & other Hypermobility Syndromes.

Skin in EDS and HSD

How the skin can be affected in the Ehlers-Danlos syndromes and hypermobility spectrum disorders
Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.
What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.
"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.
HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware
Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.
HSD: Symptoms

A short overview of common symptoms of hypermobility spectrum disorder
What is the Beighton Score?

A brief summary of the beighton scale, it's uses and limitations.
HSD: Diagnostic Criteria

The diagnostic criteria for hypermobility spectrum disorder (HSD)
Hormones and Hypermobility

How various hormones interact with hypermobility, including why symptoms may worsen around menstruation and things to consider regarding hormonal contraceptives.