Patrons

We're thrilled to have the following Patrons.

Norman Lamb (Patron)

Norman Lamb, Liberal Democrat MP and Patron of the HMSA Read more

Latest

Rachel King (Trustee)
Communicating about hidden disabilities and symptoms (Webinar) April 2021

A 1 hour webinar on "Communicating about hidden disabilities and symptoms" with Hannah Ensor, exploring effective ways to improve communication with, and help gain understanding from, family and loved ones (who we may all be spending a LOT more time with for the immediate future!)
Help me change the lives of hypermobile people!

Covid 19 changed all our plans in 2020, for me it meant I couldn't do my last large challenge. I have come up with a new challenge that fits around family restraints and is Covid proof.
2021 HypnOT Episode 5 - Weight management

Start 2021 as you mean to go on... #HypnOT - a series of five live broadcasts introducing, or gently reminding our members about some of the strategies and skills we can all use to help manage our condition.

Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.
"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.
HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware
Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.
What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.
HMSAware - HMSAnonQ, FAQ and the big question...

During the 2018 HMSAware campaign we took questions from the public and formulated them into an FAQ, with an Anonymous Question on the Wednesday evening, taking a look at that perennial question of whether or not hypermobility related health problems are rare. It is reproduced below, with an update taking into account more recent UK based research.
Victory for Kids and Teens Social Media Volunteer!

You may have noticed the lack of posts from me again the past few weeks - but I was off fighting a better fight. Kids & teen related of course! 😊
The HMSA is to become a Charitable Incorporated Organisation
How do you get through mundane tasks? By Sophie Harvey
Explaining an HMS to friends and family

A sample letter outlining life with a hypermobility syndrome to help loved ones understand. Written by Kirsty Turner