Medical Advisors

Dr Philip Bull (Medical Advisor and Trustee)

Dr Philip Bull, HMSA Medical Advisor, HMSA Trustee Read more

Latest

Recruiting: The hypermobile voice

Survey based investigation of voice in people with symptomatic hypermobility.
RECRUITING: Obstetric and Gynecologic Experiences of Women with Ehlers Danlos Syndrome

Survey study from the University of Toronto for people with Gynaecological or Obstetric experiences who have EDS.
Trustees

After going through a year of change and re-structure, we are looking for 3-4 motivated, positive, committed trustees who share an understanding of what our charity is seeking to achieve for our service-users.
Giving it up for the HMSA

Fancy giving something up for October?

Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.
"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.
What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.
HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware
Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.
HSD: Diagnostic Criteria

The diagnostic criteria for hypermobility spectrum disorder (HSD)
HSD: Symptoms

A short overview of common symptoms of hypermobility spectrum disorder
Hormones and Hypermobility

How various hormones interact with hypermobility, including why symptoms may worsen around menstruation and things to consider regarding hormonal contraceptives.
What is the Beighton Score?

A brief summary of the beighton scale, it's uses and limitations.
HMSAware - HMSAnonQ, FAQ and the big question...

During the 2018 HMSAware campaign we took questions from the public and formulated them into an FAQ, with an Anonymous Question on the Wednesday evening, taking a look at that perennial question of whether or not hypermobility related health problems are rare. It is reproduced below, with an update taking into account more recent UK based research.