Living with hypermobility syndrome

Here you will find information on a whole range of aspects of living with hypermobility, including explanations of how systems might be affected, and what can be done to help manage the symptoms.

It's important to remember that many people with hypermobility syndromes do not experience all of the symptoms - it varies hugely between people.

HMSAware - Getting physical when fully flopped HMSActive

A fully flopped Hannah gets her wriggle on, and an #HMSActive series of videos from our Exercise and Rehab adviser Catherine, there's almost always something you can do, however small - but keep moving #HMSAware Read more

Bladder and Pelvic Floor

How the bladder and pelvic floor can be affected, and some things that can help manage symptoms. Read more

Skin in EDS and HSD

How the skin can be affected in the Ehlers-Danlos syndromes and hypermobility spectrum disorders Read more

Bowel problems

Common bowel problems in HSD and EDS Read more

Hypermobility syndromes and Local Anaesthetic

An overview of how some hypermobility syndromes can affect response to local anaesthetics Read more

Posture and movement

An overview of the Alexander Technique and how, through its focus on posture and movement, it can help hypermobile individuals. Read more

Explaining an HMS to friends and family

A sample letter outlining life with a hypermobility syndrome to help loved ones understand. Written by Kirsty Turner Read more

Pain management

Pain relief and pain management in hypermobility syndromes Read more

Pregnancy

Helpful information on pregnancy and childbirth in people with hEDS and HSD Read more

Dental health

How hypermobility syndromes can affect the teeth and mouth, and how to maximise dental health. Read more

Hormones and Hypermobility

How various hormones interact with hypermobility, including why symptoms may worsen around menstruation and things to consider regarding hormonal contraceptives. Read more

Response to BSR statement March 4th 2020

We are aware of the BSR statement and have prepared a response detailing our position on the subject.

"New study confirms systemic nature of hypermobility syndromes, that late diagnosis is common and associated with negative health outcomes."

This long awaited and eagerly anticipated paper has been published today on BMJ Open. Authors of this study are Joanne C Demmler, Mark D Atkinson, Emma J Reinhold, Ernest Choy, Ronan A Lyons, Sinead T Brophy.

HMSAware - Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree

There's more to connective tissue disorders than EDS - Marfan patients often feel aggrieved that they (and others) are left out of the hypermobility conversation which is largely dominated by Ehlers-Danlos syndrome. #HMSAware

Hypermobility Syndromes Association COVID19 collated resources, regularly updated.

Reliable and credible information on Coronavirus for people with hypermobility related health issues, a collation of solid advice from International, European and UK organisations dealing with associated conditions.

What are hypermobility syndromes?

Hypermobility syndromes is an umbrella term for a number of complex heritable disorders of the connective tissue (HDCTs) which feature among a diverse constellation of symptoms, some hypermobility in some or all of the musculoskeletal system.

HMSAware - HMSAnonQ, FAQ and the big question...

During the 2018 HMSAware campaign we took questions from the public and formulated them into an FAQ, with an Anonymous Question on the Wednesday evening, taking a look at that perennial question of whether or not hypermobility related health problems are rare. It is reproduced below, with an update taking into account more recent UK based research.