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  1. Home
  2. Ehlers-Danlos syndromes

Ehlers-Danlos syndromes

The terminology relates to JHS and the Hypermobile variant of Ehlers-Danlos was updated in March 2017.
The following abbreviations will be used:
HSD= Hypermobility Spectrum Disorder (previously sometimes referred to as Joint Hypermobility Sydnrome (JHS) or Hypermobility Syndrome (HMS) )
EDS = Ehlers Danlos Syndrome (variants abbreviated with a prefix lower case letter e.g. hEDS for Hypermobile, or cEDS for Classic)
HDCT = Heritable Disorder of Connective Tissue (or depending on the nature of the article we may also use the layperson term HMSs (hypermobility syndromes) as the same thing).
 
The term HSD is used where a person is symptomatic from their hypermobility but does not have a diagnosis of one of the Heritable Disorders of Connective Tissue such as EDS or Marfan syndrome.
We advise that clinicians should apply the 2017 international criteria on Hypermobile EDS (hEDS) and only use this term if it applies to their patient.
We use the term HMS as an abbreviation for the words hypermobility syndromes when we are talking about all the disorders that are syndromes associated with hypermobility. It is not a diagnostic term in its own right; it is a descriptor of a group of disorders including EDS and Marfan syndrome. The academic term in this situation is Heritable Disorders of Connective Tissue (HDCT).

What is EDS

An overview of the different types of Ehlers-Danlos syndrome Read more

Published: 26th July, 2019

Updated: 29th August, 2019

Author: Hannah Ensor

Related topics:
  • EDS
  • EDSPage
  • Ehlers-Danlos syndromes

Classical EDS

Typical features of classical Ehlers-Danlos syndrome (cEDS) Read more

Published: 26th July, 2019

Updated: 29th August, 2019

Author: Hannah Ensor

Related topics:
  • classical EDS
  • EDSPage
  • classical Ehlers-Danlos syndrome
  • cEDS
  • Ehlers-Danlos syndromes

Vascular EDS

An overview of the typical features of vascular Ehlers-Danlos syndrome (vEDS) Read more

Published: 26th July, 2019

Updated: 29th August, 2019

Author: Hannah Ensor

Related topics:
  • Vascular Ehlers-Danlos syndrome
  • vEDS
  • EDSPage
  • vascular EDS
  • Ehlers-Danlos syndromes

Hypermobile EDS

An overview of the diagnostic criteria for hypermobile Ehlers-Danlos syndrome (hEDS). Read more

Published: 26th July, 2019

Updated: 29th August, 2019

Author: Hannah Ensor

Related topics:
  • hypermobile ehlers danlos
  • EDSPage
  • EDS 3
  • hEDS
  • hypermobility type EDS
  • EDS III
  • Ehlers-Danlos syndromes

Video: Overview of new classification of EDS

An overview of the new classification of EDS by Dr Hana Kazkaz Read more

Published: 24th July, 2019

Updated: 21st August, 2019

Author: Hannah Ensor

Related topics:
  • HSD
  • new criteria
  • EDSPage
  • video
  • hEDS
  • 2017conference
  • Ehlers-Danlos syndromes
  • Videos
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Tag cloud

2017conference child EDS EDSPage hEDS HMS HSD hypermobile ehlers danlos hypermobility hypermobility spectrum disorder Kent Model kid Marfan marfan syndrome MarfanPage Trustee

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