Leg pains

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Leg pains

Postby ce-in-london » Sat Jan 31, 2009 12:58 am

Has anyone else experienced what some people might call "growing pains" in their legs? I've felt a constant, dull ache in the muscles in the backs of both my thighs and also felt shooting pains there. I first got them when I was 15/16 and they went away after about 6 months. A few years later they returned and then went away, but they've recently returned. This time they're more painful than ever and quite distracting, especially when I'm sitting at my desk at work. They don't seem to go away after exercise and are constant, not worse at any particular time of day. Apart from this health wise I'm fine at the moment. They're definitely deep muscular pains and not joint pains.
I've read that "growing pains" in children and teenagers are related to hypermobility, but I don't know what exactly would be causing these pains at the age of 24! I'm going to see my GP and ask if I should be referred to someone like Professor Graham.

Re: "Growing pains" in legs as an adult?!

Postby Finarda » Sat Jan 31, 2009 2:56 am

A lot of the pains I get from overexertion feels exactly like growing pains did. It's a sign to me that I've done too much - it may not be much that I've done, but I now know to associate the activity and the pain once I look back to think about what I've been doing. It doesn't have anything to do with growing.

Don't ask me why but I thought it was circuses that caused growing pains when I was a kid! :lol: Every time that I sat on the floor at home and watched a circus on TV was when I felt the worst growing pains. I think looking back that the only time my dad really watched TV was to watch a circus (don't ask!) so I guess before he took a break from working we all had to work extra hard to get all the chores done and that led to me then having aches ("growing pains") at roughly the same time period. Hence circuses cause growing pains (at least in my childhood mind!). Jeez, talk about going off at a tangent - sorry!!

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Re: "Growing pains" in legs as an adult?!

Postby Helenback » Mon Feb 02, 2009 12:14 am

until i started piecing together the clues, and realising that i had HMS, i thought that was normal! :lol: I just assumed that everyone got that. always worse when i've been using the muscles.

Re: "Growing pains" in legs as an adult?!

Postby ce-in-london » Mon Feb 02, 2009 11:08 am

Thanks for your responses! I however haven't been particularly exerting myself recently so the pains remain a mystery... I'm going to the docs next week and I hope they know what hypermobility is! It'll be difficult if they don't know much about it! I might ask to be referred to a specialist like Prof Graham if they suggest I see someone more "in the know". They may on the other hand think I need to see a physiotherapist.

Re: "Growing pains" in legs as an adult?!

Postby Helenback » Wed Feb 04, 2009 5:45 pm

I've been to see GP today to ask for referal to specialist HMS rhumy at Bath (as nearest to me).
I went armed with info from this site and Arthritis Research Campagn, expecting to have to convince him. But after seeing what i can do with my thumbs (LOL), and remiding him of my early onset knee and back problems, he agreed pretty much straight away.

Re: "Growing pains" in legs as an adult?!

Postby ce-in-london » Thu Feb 05, 2009 4:43 pm

That's great Helen! I hope my GP understands like yours did! I'm going to get some deep heat after work to rub into the backs of my legs as these pains are quite annoying, I've had them non-stop for almost 2 weeks now...!

Re: "Growing pains" in legs as an adult?!

Postby Spireite » Mon Feb 09, 2009 11:06 pm

Yes I get 'growing pains' from time to time waist down and I'm 45!! It helped convince me I was hypermobile. I can also do numb or semi-numb from the waist down, or sometimes just one side of the body. I think it is a hypermobile thing, but I'd like to understand how exactly.
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Re: "Growing pains" in legs as an adult?!

Postby Sandy L » Wed Feb 11, 2009 11:30 pm

I was surprised and a bit shocked to find out that "growing pains" is an accepted, codable diagnosis. Back in the dark ages when I was in medical school, we occasionally encountered it when the correct diagnosis should have been acute rheumatic fever. Usually, by the time it came to light, the patient was an adult who needed heart surgery to replace a damaged valve. Here, it appears as misdiagnosed HMS or EDS. There may be some legitimacy to it, but I haven't seen a lucid explanation of pathophysiology other than an incorrect diagnosis.
The kinds of pain described in the first post in this thread would lead me to wonder about a pinched nerve root where the nerve emerges from the spinal canal. I think that should be considered and either adopted or ruled out before arriving at adult growing pains as a diagnosis. There should be at lest a few other, more specific, possible diagnoses that would emerge with a full history and physical examination.
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Re: "Growing pains" in legs as an adult?!

Postby ce-in-london » Fri Feb 13, 2009 1:47 pm

I went to my doctor, who understands what hypermobility is about, and she told me that the pains in the backs of my thighs were most likley caused by my muscles contracting in the very cold weather we've had recently. It's strange why they're just in that location, but she suggested I come back and get a prescription for anti-inflammatories if it happens again and will also take a blood test to check for fibromyalgia and other things.
Deep heat helped ease the pains but I can only use it in the evenings as it smells so strong - I have to rinse it off in the morning before going to work!

Leg Pain

Postby ridgie » Wed Mar 21, 2012 12:07 am

Couldn't find another post on this topic, but I'm having serious problems with my legs lately. Its a generalized, dull, achey pain from my knees down to my ankles including my calfs and shins. Its constant and nothing takes it away i.e. heat, painkillers, anti-inflammatories, heat rub. Don't know whether to go back to my gp regarding this. Its fine during the day when I'm walking around at work but I think I'm too busy to notice the pain. Its not until I get home that the pain starts or I notice it i.e on resting. I just need to take the pain away its driving me crazy!
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Re: Leg pains

Postby cracker » Sat Jul 07, 2012 10:06 pm

i get leg pains like growing pains too it realy hurts it gets worse when i have flare ups :cry: :wall:

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Re: Leg pains

Postby Rosie » Sun Jul 08, 2012 5:11 pm


ridgie, it sounds like your lower leg muscles are working hard to keep your joints stabilised, trying to do the work that your ligaments should be doing. This type of pain gets worse as the day progresswes, and often when you stop or rest the muscles go into spasms. It is an overuse type of injury, and can be helped by strengthening the muscles so they can cope better, and/or by supporting the joints with braces or splints for part of the time. This is not much use in the short term, I know, but may be worth talking to your GP about.

Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Re: Leg pains

Postby Laura » Wed Jul 25, 2012 1:57 pm

I get a dull ache down my legs all the time and the only thing that varies is the intensity of it. It's definitely made worse by cold, damp, any kind of draft/aircon and overexerting myself. It also gets worse when I have flare ups and often gets to the stage where I'm in too much pain to stay at work (sitting down office job).

My nightly dose of Ami takes the edgo off the pain, but otherwise all I can do is try to manage it. Even when it's 30 degrees outside I have to sit at work with my legs wrapped in a blanket to protect them from the aircon. If we go visit friends and family, I always take a blanket and woollen socks with me, even in the summer. When the pains are particularly bad, I also use a hot water bottle or a heat pad, as heat does alleviate some of the pain, but only as long as the source of heat is there. If I get up, the pains come back straight away.

Ridgie, I would recommend you get a small electric heat pad (I got mine last year from Amazon for about £20), as you can have that either against your lower back, under your legs, or even wrapper around a leg to alleviate the pain. It only works when you're stationary, but if that's when you notice the pain most it shouldn't be a problem.

Hope that helps!

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Leg pain

Postby Smile » Fri Mar 01, 2013 10:53 pm

Hi, I just joined and wrote a summary of my story to date so I don't want to repeat it all again but perhaps you could read that if you feel you can help me? I'd like to know if there's others out there that have hypermobility but where the pain affects their legs causing severe muscular pain? The pain affects both legs from top to bottom, mainly down the backs and sides and gets worst with sitting especially but also too much walking or staning if I'm in pain when I start out. My legs hurt to press on anywhere really and my feet also hurt when it gets really bad. The rest of my body hurts in the same manner to touch but only if I press firmly. I often find that the pain is worse 2 days after I did a bit of walking or bending or sitting for too long.

If anyone else suffers in the way, please let me know and if you've been able to get better? I have tried amitriptiline, gabapentin, co condomol, diclofenic, tramadol. Have tried physio, chiropractor, exercises, walking, swimming, nothing really helps... I have to lie down a lot and take tramadol and apply heat but I would like my life back!

Thanks for reading...
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Re: Leg pains

Postby balot » Tue Mar 05, 2013 2:11 am


I have this leg pain too... it's like a dull ache accompanied by sharper shooting "electric shock" pains, burning, tingling, stabbing... It's kind of difficult to describe. I get this type of pain in my arms too, but less so.

It's always there, and seems to get worse at night when I'm less active.

Nothing helps it except alcohol. Pain killers do nothing.

I was reading up today about complex pain syndrome, thought maybe there is a connection there. After all, us EDSers tend to have a lot of issues with our spine. Thoughts?
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