I get bad neck pain from spondylitis, where the osteoarthritis is pressing on nerves in my neck, this sends pain down both arms, collecting in the elbows and fingertips and also up over the back of my head sometimes. I find heat can occasionally help although it sometimes makes my dizziness worse(I have POTS too and I think the dizziness is also from that, this doesn't respond well to heat for me). Something that helps is to avoid using my shoulders and arms too much because if i have been carrying things or doing something like trying(trying being the operative word!) to peel veg, (yes yes I know I shouldnt) then that makes the shoulder muscles clamp up and that in turn affects my neck as the cramped muscles push on it. Gently massaging the hard muscles there can help but you need a sympathetic, patient and non finger-challenged other person to do this massage for you....! Having special mirrors on the car so you don't have to turn your neck when driving is also a help, these can be purchased cheaply from Halfords etc. Sleep wise I have a memory foam mattress whch has helped enormously woth theEds as a whole, and I did try a neck memory pillow but found it too firm. Try not to click the neck in a grinding movement but instead to gently tip the neck back and fore and side to side to relieve the tension(taking care not to go too far). Don't spend too long at the computer(!) etc and take care over your position when reading-get a cushion propped up on your lap and the book on th t so that you aren't bending the neck down too far.These are all tips I have thought of so far, I will post more if I think of any, hope some might help.
Aged 47, dx EDS 3,POTS, Coeliac, breast cancer 2002. I have 4 children: son 14 - HEDS & Coeliac, daughter 25 - HEDS, POTS, pernicious anaemia, daughter 27 - HEDS, Behcets syndrome, also daughter 22 & 3 grandchildren unaffected as yet.