I just got back from the Eye Clinic at our hospital. I've been having problems with dry eyes for years but it's been getting more and more painful for the past couple of years.
They did the Shirmer (?) test where they put paper in the bottom of my eyes for 5 mins to see how much moisture it would soak up. My left eye was borderline (15mm) but my right eye was very dry. They then put local anaesthetic in my eyes and repeated the test and this time, without the irritation of feeling the paper in my eye, the results were just under 4mm in each eye which is classed as Severe dry eye. They then put dye in my eye and used a special blue filter and observed corneal erosion. The edge of the eyelid that touches the eye was also apparently hard and crusty so I have to use warm compresses for 20 mins four times a day to try to heal up my eye lids. I also have to put artificial tears liquid eye drops in twice a day and artificial tear gel in twice during the evening and night and I have to do it every day regardless of whether I feel pain or not.
I have to go back next month and they will do a dilation exam and I think they're going to repeat the Shirmer test (woo hoo, can't wait to have paper stuck to my eyes again...
) Forgot to add that they're also going to talk to me next month about surgically implanting plugs into my ducts that drain tears away to try to keep the tears around longer.
I think they're also going to suggest that my GP refer me to a rheumatologist to get investigated for Sjogren's Syndrome (which my mum had too). (I also have septal erosion in my nose, as well as dryness in every other moisture producing part of my body).
Diagnosed EDS - Hypermobility 2004. Severe Hemiplegic Migraines. Both kids show hypermobility but haven't been tested.
A Scot living in Canada