Hi Nonya, I have only been very recently diagnosed with EDS by my rheumatologist and have had to ask for the help of the local PAL worker to be referred to see a specialist, as my GP refused to refer me unless I pay to be seen privately, so I haven't seen anybody about my feet as yet, in fact I have had no help whatsoever apart from being prescribed Zydol. In point of fact even an eye clinic appointment That was requested by optician in April and marked urgent, has been cancelled (Not by me) since I was diagnosed, and the explanation I was given is that my "sight loss is attributed to EDS so there is nothing that can be done " An amazing diagnosis as I have not had my eyes examined by anybody apart from my optician.
My GP firstly said that he was "unfamiliar with the condition" (EDS) and it would seem that he is being very obstructive with regards to me getting any treatment whatsoever. I have been waiting for over two months to get the results of blood tests relating to liver cancer. Letters and reports get "lost" in the surgery that pertain to me also. This is why I have had to ask for the help of PAL.
Sorry, I digress
, the pain is a sore, ache, akin to the pain from a deep bruise, but intensified, and is worse when I stand. I wear heels most of the time, not too clever when you have weak ankles etc., and are prone to falling.