Hi all I thought this might be the best place to put this. I saw my Pain Consultant today I told him what had gone on and how I felt after the Sacro Illiac joint injections, I said to him that I wasn't complaining about the nursing staff on the daycentre unit but they should have had a better understanding about hms and that we need more time to recover afterwards not all this conveyer belt system cause we can't do it. He said that some of it was his fault that he should have made them more aware and needing more time also that they wouldn't hardly ever see someone who has hms so they don't know anything about it.
We discussed the next options and he said he could bring me back in and inject my muscles in my back with Botox and a steroid to see if it will help as Botox is supposed to help muscle spasms and that he would make the nursing staff aware this time that I need more time. He said he will try and get me in asap, also he wants my gp to prescribe either Oramorph or MST tabs for the meantime.
Hopefully I won't have to wait to long. I am quite pleased with todays outcome.
Hms December 99, Dormant Lupus Sept 07, Back Pain, Raynauds, RLS, Fibromyalgia June 08, EDs Aug 08, Marfanoid features Aug 08, Dyspraxia age 5