Neck Stablisation - urgent advice needed!

Surgical procedures used in the management of HMS.

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Postby hannah » Tue Dec 11, 2007 5:28 pm

:hug: lizzie.
I'm sorry it is being so complicated, and hope you get the scan tomorrow without futher problems.

Hannah
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Postby Rosie » Tue Dec 11, 2007 6:50 pm

Oh Lizzie, they are really mucking you around with this. :pray: it goes ahad tomorrow.

:bye:

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Postby poppy » Tue Dec 11, 2007 8:57 pm

really hope it goes ahead tomorow
pain is just weakness leaving the body (try to believe it, it helps)
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Postby lizzie22 » Wed Dec 12, 2007 3:26 pm

All done now.

Got a call this morning saying they had moved my MRI up to 11:20am instead of 5:40pm. All went ok although had to keep stopping as it was quite painful, but at least its done. Reports should be here in 24 hours.

Just wanted to say thanks for all the kind comments. Will update when the verdict arrives.

Lizzie xx
Este pasará también - This too will pass

Diagnosed Nov 2005 HMS, EDS II and III
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Postby poppy » Wed Dec 12, 2007 3:29 pm

glad they finally got it done, try not to worry about the results
pain is just weakness leaving the body (try to believe it, it helps)
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Postby sarahh » Wed Dec 12, 2007 9:08 pm

Hi Lizzie glad it's all done now hun I will keep my dfingers crossed for you and I will be thinking of you.

Sarah x
Hms December 99, Dormant Lupus Sept 07, Back Pain, Raynauds, RLS, Fibromyalgia June 08, EDs Aug 08, Marfanoid features Aug 08, Dyspraxia age 5
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Postby Rosie » Wed Dec 12, 2007 10:04 pm

Hi Lizzie

I am pleased that you have had you MRI today, I will be thinking of you tomorrow when you get our results.

:bye:

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Postby naama » Fri Dec 14, 2007 2:16 pm

Lizzie,
Glad it's done. I hope the results were conclusive one way or the other
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Postby lizzie22 » Fri Dec 14, 2007 2:26 pm

This isn't turning out to be very easy at all.

Results were meant to be here within 24hours i.e yesterday morning but its been 48hours now and still no sign yet? Rang up Prof G and he said he hasnt recieved the report yet, so rang the MRI people and they said they sent it yesterday by email and fax? So, bit stuck now :?
Este pasará también - This too will pass

Diagnosed Nov 2005 HMS, EDS II and III
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Postby nat05 » Fri Dec 14, 2007 10:41 pm

oh lizzie! im so sorry that your having problems getting the results. They should be able to just send them again as they shouild have the originals.

i would follow it up with prof g again as maybe he hadnt recieved it then but has now. if not its back to the MRI people.
x
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Postby lizzie22 » Fri Dec 14, 2007 11:26 pm

I emailed him this evening, about 6:30pm but no reply.....

And now I'm assuming that I wont find out until at least next week as its now the weekend. All I want to do if find out whether i can relax or whether something needs doing :cry:
Este pasará también - This too will pass

Diagnosed Nov 2005 HMS, EDS II and III
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Postby sarahh » Sat Dec 15, 2007 12:38 am

Hi Lizzie hun I hope you hear from the Prof soon.

Sarah x
Hms December 99, Dormant Lupus Sept 07, Back Pain, Raynauds, RLS, Fibromyalgia June 08, EDs Aug 08, Marfanoid features Aug 08, Dyspraxia age 5
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Postby nat05 » Tue Dec 18, 2007 9:46 pm

Any news yet? I hope you manage to find out quickly to put your mind at rest. :hug:
nat
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Postby lizzie22 » Thu Dec 20, 2007 11:31 pm

Have spoken to Prof G now. There is some good and bad news i think.

Good news - Although yes there is some problems with my neck and he said he wants to keep a close eye on it, its not unstable enough for the surgery - thank goodness.

Not do good news - He is still concerned with the level on numbness, pain and lack of response when he did nervy stuff to my hands etc. He is sending me for more tests after Xmas so try and find out what is wrong and go from there.

So there we go. I just wanted to say a big thanks to everyones kind comments, i really appreciate it. Take care.

Lizzie xx
Este pasará también - This too will pass

Diagnosed Nov 2005 HMS, EDS II and III
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Postby nat05 » Fri Dec 21, 2007 9:45 am

Lizzie,

:alcoholics: for the good news - no need for surgery is a big deal for us!

:hug: for nerve issues. I too suffer numbness etc which is horrible but at least it is being dealt with promptly.

Take care and keep us updated.
xx
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