HIPS HELP

[GLYNIS]

Ive just managed to get tp my lap top, Been laid up for a while now, Anyone . I knowmy hips went a good few days ago still ina lot of pain, This is the first time my hips have done this , How long before it gets better!(its not back related , as you all know I have a back prob anyhow ) this is so awfull, its the one thing I hoped would not happen to me.Sorry if post is in the wrong place Mods but cant sit here long looking .Any how hope eveyone else is okay , missing chat rooms ect ....

[nonyanomemory]

Hi Glynis i am sorry you are having such pain with your hips. Has the problem been assessed at all by a physio or doctor to see if any therapy at all would be helpful? In the meantime - I hope this flare eases somewhat sooner rather than later. take care - nonya

[Zoe*]

hello, sorry to hear your feeling so rotten!
I have alot of hip probalems.
all i can say is try heat. thats genurally alll that seem to help me

I hope your well soon!
hugs

[Hayley]

Hi Glynis

Sorry to hear about your hips being bad - I know how you feel as I've had bad hips for over 20 years now! If you can manage to get into a warm bath, that can help a little bit, also putting a hot water bottle against the pain helps a little too. Otherwise, all I can suggest is that you take it easy and get plenty of rest. Hope you feel better soon.

Hayley

[hannah]

HI glynis,

I'd just ditto the warm and relax advice above - my hips have been playing up since october, but I am now beginning to get them under a little more control (I hope ) and I find warmth can relax out a lot of my 'tense muscles' pain, which makes the rest a lot easier to cope with.

Very genlte

[Maskte]

Hi Glynis, sorry you aren't too good at the moment. Thank goodness you can manage the laptop now! I find when my hips are bad, tho' they don't dislocate, I lie on a little electric blanket. It's just big enough to wrap round and isn't uncomfotable to rest on like hotties can sometimes be! Take care hope you're better soon x

[science geek]

I have a really bad right hip and ive found a tens machine is quite good jus on a low setting as it relaxes the muscles a bit and eases the pain also same old trick ice for ten mins heat for 10 mins as heat reduces pain but increases swelling and the cold reduces swelling.
Another thing ive found which helps all aches is something called devils claw gel which is a homeopathic remedy.
Hope their better soon

[ombili]

I am wondering if any of you have any opinion on what is going on with my hips. I know, I know, it's probably out of place to even ask, but still, I'm gonna throw it out there anyway.

So here's the deal: when I walk, a lot of the time (I'd say about 80%) now, my right hip makes this sound with every step - I would describe it as saying it sounds like a quiet snap - and I feel like two hard objects are turning against each other. When I put my hand on my hip, I can feel a snap every time I take a step.

It doesn't seem to happen as much immediately after strenuous exercise, but it is loud enough that I can hear it when I'm walking around.

It isn't exactly painful, more just uncomfortable, although I do have hip pain, but more in the other hip, I think.

So what do you think this is? I'm just curious...

[Claradee]

Does anyone have CDH/DDH? I am 36 and have bilateral CDH which was diagnosed late (at 3 yrs) and I've had a series of operations over the years to try to correct this. I've recently discovered this site and am amazed that many of the symptoms described relate to me. Some of the things I have noticed are
I have mild scoliosis
I have had a micro discectomy for a prolapsed disc in my lower spine(12 yrs ago)
I have very flexible thumbs and loose knees (+ increasing knee pain)
My scars from surgery on my hips are wide and look thin to me. Take a long time to fade anyway.
My ribs are very high and stick out uneavenly
My pain in mainly in my hips and knees.
Pain definately increases around the time of my period and with cold weather
I had very quick labours with both my children.
I feint when I am given local anaethetic (not sure if this is at all related or not - could just be me feeling woosy!!)
I have recently had a steriod injection in my hip for bursitis, but I'm not convinced this is what the problem was as I still have pain the same as before and ultrasound scan didn't show any inflamed bursa.
My Xrays on my hips show them to be okay (ie not arthritic), but I do have odd shaped end of my femurs. I am still have pain in my hips which gets worse through the day and pain killers (diclofenac) don't seem to help. After a good rest, I am better though, until I start walking and doing everyday things (hoovering/ironing etc etc)
I'm a bit confused and not really sure where to go from here. This syndrome has never been mentioned to me by any health professional I have come into contact with (& I've seen a few!) but it all seems to fit.

Anyone with any similar experiences, please let me know. I would love to hear from you.

Clare

[sarahh]

Hi Claradee welcome to the boards, I am sorry to hear you have been through the mill with things, Sorry I don't have any experience of dislocated hips. The scarring, quick labours, flexibility etc sounds like hms/eds but the first thing would be to get a diagnosis for it to confirm. I would maybe ask your gp to refer you to a rheumy who knows about hms or maybe to one of the hypermobility clinics. Print some info off the site and take it with you to your gp and see what happens.

I hope this helps

Sarah x

[elanna]

Hi Clare,
I just stumbled on this site... have not been to an MD, so don't have any diagnosis - but your descriptions definitely rang a chord w/mine:
Does anyone have CDH/DDH? - Don't know, but I was born w/severe pigeon-toed legs - so wore leg braces at night for years starting at birth... my hips have ALWAYS come out of their sockets fairly easily - bone knocks against bone, without full discloation. Recently, they're hurting quite a bit, go out of joint when I 'pivot' when walking
I have mild scoliosis - me too
My ribs are very high and stick out uneavenly - yup
My pain in mainly in my hips and knees. - and shoulders.

My hips were the 1st part that would 'knock' from a young age - thought it was just that my legs were born pigeon-toed.
Then both shoulders starting diclocating recurrently in high school - thought I was just excercising too much.
Then my jaw - thought it was ok - lots of people have TMJ.
Now just recently, 4th finger each hand started subluxing (new vocab word for me...), after just starting to play guitar.... that's when I finally thought this really was weird - & did a google search, came upon this site.

This all really does seem odd to me - understandable, but funny how you can just ignore/explain away multiple recurring dislocaitons, for years - & not think much of it.

How are you doing with this?

[Claradee]

Thanks for your replies, I went to see my lovely GP last week, not really knowing what sort of reaction I would get, but he was wonderful. Examined my legs and wrists and even looked up hypermobility on the NHS direct website when I was there as he doesn't know much about it! I'm having blood tests tomorrow (he's going to do a load, but I'm not really sure exactly what for) and then refer me to a rhematologist. Feel great that I was taken seriously and just want to either get a diagnosis or at rule out that another reason for my hips & knees hurting so much.
C
x

[Toe]

Hi Clare,

oh my, its nice to know I am not the only one who has this hip overgrowth thing, my hip jonts are shaped like pears instead of apples... lovely way of putting it isnt it?

I also have it in my Jaw and Wrists too, if you need any advice on the overgrowth PM me.


Take care
Toe x

[magical]

Hi,

as many of you know ive been going round in circles with doctors for along time , as im sure many of you have. So i enventually saw a neurologist who said that he may never have an answer about my walking but i had a brain scan and spine scan anyway.Yet to get the results.

Now the problem is i know the answer as to why my walking is bad.Its my hips, they pop out all the time and i think ive addapted my walking so much that it is confusing the doctors. So im trying to teach myself to walk kinda normally but this is causing alot of pain in my hips and more popping.
So ive figured my body has adapted to protect itself.

Now heres the problem, my physio knows this happens and cringes when it does but when my scan results come back negative then where do i go to get the proper help. im actaully ashamed of seeing anymore doctors, but do you think if that if i retain my body to relax more when i walk because i walk with my muscles tight to hold everything together. so do u think if i relax and just let my hips pop in and out and more pain then maybe a doctor will relaise the problem.

im not even sure what can be done for hips, but i dont know where to turn now.i was gona discuss this with the neuro on 30th dec when i see him.That wouldnt be his speciallity though. Help i dont know where to turn, at the rate im going il soon be in a wheelchair and still have no answers.

h x

[hannah]

Hmm. very good question magical. I realised relatively recently that I was having a similar problem with my knees - the neuros couldn't diagnose anything from my walk because half of it was compensating for my knees pinging out in all directions. I learnt to walk 'normally' (well, without compensatory holding together techniques) and then used that walk (or stagger) to persuade my orthotist to get me knee braces (1st one due on Friday...)
A word of warning though - it probably isn't a good idea to always walk in the 'relaxed' way because of the hips popping out all the time. If you can get it so that you can turn off all compensatory walking mechanisms at will, that might be safer until you have some more medical back-up.

Yes, it is worth raising. You are right that a neuro might not be that interested but maybe he will refer you on.

You may need to explain it something like this: I've been thinking about my walking, and discussing it with my physio, and I've realised that some of my gait problems is because my hips keep popping out. So I've automatically adapted how I walk to avoid the pain/damamge. My physio has been trying to help me but we don't seem to be getting anywhere in retraining the muscles or making the hips stay in place. Do you have any ideas who might be able to help?"

I wonder whether intensive in-patient hip physio might help - yes, it probably would hurt a lot, but I have found that with some of my joints, after an interim period where muscles haven't yet made much progress, it really does help stabilise. The daily physio provided in an inpatient setting can be more effective than the usual weekly/monthly sessions.

Another option may be hip orthotics - OK so I know almost nothing about these, and bracing isn't always a good idea, but if you combined bracing so your hip re-learnt where it was supposed to be, with strengthening physio, the overall impact could be positive. This is what I will be trying with my knees. Physio made my legs and knees generally strong but hasn't made any difference to my balance/ability to keep my legs upright without resorting to a walk from monty pythons 'ministry of silly walks', so I'm going to see how I get on with braces.

Or maybe a combination of intesive physio and hip/leg supports...

If you think there is a chance that any of these suggestions might help, suggest them to the neuro. With any luck he will refer you somewhere appropriate (probably back to your rheumy)
Do I remember rightly that you were refered to neuro by UCLH? If so, then could you ask to be referred back to him with a request for hip specific stuff? My experience with UCLH is that they won't provide any physio or the like while there is a chance of undiagnosed neuro problems - once this has been ruled out or found they start being a bit more helpful (I only got physio after they'd finished all the neuro tests).

All the best and keep us posted on how it goes. Feel free to pm me if you want to.

Hannah