It hurts, what to do? General Pain Management queries

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It hurts, what to do? General Pain Management queries

Postby tireesix » Sat Aug 11, 2007 7:22 am

I am in agony. All I did was walk to the ruddy shop and on tthe way back while I stopped at the chinese I started getting twinges. By the time I got home I was really sore and this morning I coulds barely get out of bed. I am in agony. My spine doesn't feel like it is sitting right towards the base.

Thing is, I am in the middle of a pregnancy scare. I have no idea what to take. My DHs son arrived yesteerday for 3 weeks and I really don't want to get in the way of their first day together by (insert swear word of choice) about with hospitals etc............ What am I going to do??????????
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Postby tireesix » Sat Aug 11, 2007 8:54 am

Its ok, pregnancyy test is a negative............. I am now gonna head as fast as my body will allow me to the pain releif.......... I am in so myuch pain, sitting down is hurting, everytthing is hurting................ ..........
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Postby hannah » Sat Aug 11, 2007 9:05 am

:hug: Tiree - I hope those painkillers work. then try to relax so that any muscle spasms might hopefully release and reduce the pain further. Try hot and cold too?

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Postby tireesix » Sat Aug 11, 2007 9:40 am

Thankyou!!!!!!!!!!

It feels like something is trapped or twisted.......Its not the same as sciatica, not how I remember it anyway. I have a physio appt beginning of next week so I shall hopefully get seen.........

I shall buy meself a pack of peas I think.
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Postby Retro » Sat Aug 11, 2007 10:26 am

Hi Katie,

Buy two packs of frozen peas...one to use and one to freeze :wink:

Sounds bad, Hannah is right if your having spasms you need to relax but if something's out of place you need to keep it moving gently so that it can go back in. In saying that, the first time my vertebrae moved I was instructed to lie flat on my back for 3 weeks (saw the GP every week for a progress report).

Take care,

Lindsey
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Postby tireesix » Sat Aug 11, 2007 12:08 pm

Ok, just been for a walk, if I lie or sit down it gets too painful and I find it really difficult to get back up so I thought a nice easy walk might shift it a bit. It does feel a bit easier but then I have taken a load of pain killers too.........

I figureed tht if it is easier if I keep gently moving then that is probably the right thing. Once DH and SS have gone out I might just seee if some stretches help.

It was so bad this morning I really did think I was going to have to go to hospital!!!!!!!!! :oops:

Thing is, my joints haven't been so bad reecently so this sudden dive into pain has really given me a shock. I am absolutely positive it has more to do with my ankle than anything else. The past few days I have had my ankle really bad and because they have tightened the ligaments I am completely unable to crunch it back. My ankle weent really badly on thursday then the next day I get awful back pain, the last time before that, my anklee went really bad and then the next day my opposite leg was agony. I think that because I have to compensate for my ankle so much it just throws everything out, especially what with having hypeermobilee joints.

So.......................... I am going to DEMAND that tthe surgeon sortsit out cos I can't carry on like this.

Thanks though!!!!!
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Postby Sandy L » Sat Aug 11, 2007 1:00 pm

There is some chance a chiropractor could help with that.
I am a physician specializing in occupational and environmental medicine. I am not an authority on HMS or EDS, but find I have several patients with the condition and am trying to learn more.
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Postby christianne » Sat Aug 11, 2007 2:38 pm

Oh Katie I hope your back ssorts itself out and you getsome rekief from the pain, you poor thing. I have done something to my neck/shouder and can't move it properly, aaargh! So from one crock to another-hugs
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Postby tireesix » Tue Aug 14, 2007 1:07 pm

Update........

Saw physio ttoday, she has banned me from doing anything other than lieing down, sitting and gentle walking, she says there is nothing she can do to help until the pain is under control and so has ordered me to my GP to get stronger pain relief because the paracetomol, ibuprofen, codeinee and amitryptalline (sp?) isn't working. Once the pain is under control she tolsd me to ring and make another appointment. I thankfully have managed to get a GP appointment for today so wish me luck on getting better pain relief!!!!
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Postby Rosie » Tue Aug 14, 2007 1:59 pm

Hiya Katie

I hope you get some stronger pain relief from your GP, there is plenty they can chose from. I think your physio sound very switched on, not giving you physio until your pain has settled a little. Good luck and take care.

:bye:

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Postby tireesix » Tue Aug 14, 2007 5:42 pm

Thee Doctor said the only thing they can do is increase my amitriptalline?????? I am taking codeine and thats not doing the job, tramadol isn't doing it but she said there is nothing else they camn prescribe. The only other things I can try are tens (which isn't helping either) or physio deedspite me eexplaining that the physio doesn't want me doing physio until I have stronger pain meds.........

Ruddy pointless. Any ideas anyone?
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Postby paw » Tue Aug 14, 2007 6:08 pm

Can you get an opinion from another doctor? I have had to change before when my shoulder doctor thought it would "just heal up" by itself. :( The other doctor actually cared that I was hurt and he fixed it. There was no chance of it getting better without surgery and that first doctor was not doing his job.

Take care of yourself and keep looking until you find a doctor who can help you. :hug:
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Postby tireesix » Wed Aug 15, 2007 6:04 am

I think the doctor thought my back ache was related to me starting my period yesterday. She asked me when my period starts........... I am so miffed. I don't get back ache periods.

I am so frustrated. My right wrist is now not functioning properly either.
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terrible pain and stiff joints

Postby libby » Tue Oct 23, 2007 12:40 pm

hi,

i've had terrible surgery 3 months ago in my hip (tumor) and now i'm supposed to be getting better and waiting to be told i can one day get out of my wheelchair. but my joints are just deteriorating and i can't get any help. all of my doctors are convinced that i either have pain because i take morphine and try to convince me to take more and more morphine (which i don't want, i want to try to take less and be more alert, and i always thought the medical establishment was trying to give less pain killers, not more - it's strange...) or because i have HMS. i doubt that's the reason, so i wanted to ask for advice.

the place where i had the surgery hurts, of course, but i have a new pain which is in all of my joints. it's terrible, and they feel very stiff; it seems more similar to what people who have osteoarthritis describe. or maybe even fibro? i don't know; i've never had stiff joints before - they've always been too loose, but now i have horrible pain in my hips, knees, ankles, shoulders, elbows, 'etc., and if i stay in one position for long i feel as though my joints were broken and refuse to move and i have to force them to move again or the pain gets worse and worse. maybe this is a result of sitting in a wheelchair, and not being active, i don't know - whatever it is, it's almost unbearable. i went to a pain specialist who said i should try to take a medicine for meuropathic pain, i think it's called neurontin, but my GP refused to let me have it and it's very expensive privately. so that was that.

so i wanted to ask if this sort of pain sounds familiar to anyone? what would you suggest? the rheumatologist refuses to see me; he insists that i have to go to pain management, but this is a new and unfamiliar kind of pain. my GP just wants me to take more morphine and i'll be fine
:cry: no matter how many times i say that if i have to keep taking fentanyl patches and sleep for the rest of my life, then i might as well not even try to make an effort because i don't function. i admire people who manage to take these meds and function; i just sleep all day long. it's a waste of time to be alive like this. there are so many things i want to do, and all i basically end up doing is staying in bed, in agony, and doing absolutely nothing.
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Postby Rachael » Thu Oct 25, 2007 8:01 am

Morning Libby :)

I hope you are ok? I am sad to see you have not found anyone else yet who has this specific pain and can offer you really good advice. I hope someone who knows lots see's it soon.

I just wanted to throw in that I was recently given Neurontin for horrific stabbing, burning pain in my arms that left me in tears every day. The neurontin along with amitrptyline now more or less mask this pain most days and seem to be the recommendation for neuropathic pain. One thing I did discover was that 'Neurontin' is a specific brand name 'Gabapenthin' is the generic name and I wonder if gabapenthin can therefore be cheaper?

I have recently had an MRI scan on my pelvis / hips as I am in terrible pain and have recently had to invest in a walking stick. The results have come back clear which although I suppose is great news has left me feeling a tad upset. I also get really deep pains almost to my core in this area and have nothing left to explore (I think) except to try again with physio which normally makes me worse,

I sincerely hope you get some good responses to your mail honey.

Best wishes
Rachael :hug:
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