I`d love to come to a residential weekend and possibly 2 adult daughters too,(my son too if there`s something there for kids with HMS). Near to good rail links would be ideal,and not too far North(I`m in S. Wales). A journey of over 3 hours or so on train would be out ofthe question without stopping halfway. I`d have come to the ball but have an important event on that day. If it`s not possible to get a location that suits everyone how about doing two separate ones , one in North and the other South(hate to separate us like that but may be only way?...)
Last edited by christianne
on Mon Jul 23, 2007 1:15 pm, edited 1 time in total.
Aged 47, dx EDS 3,POTS, Coeliac, breast cancer 2002. I have 4 children: son 14 - HEDS & Coeliac, daughter 25 - HEDS, POTS, pernicious anaemia, daughter 27 - HEDS, Behcets syndrome, also daughter 22 & 3 grandchildren unaffected as yet.