Hi!

[Spireite]

Hi everyone,

I have had seven years of wondering what was happening to my previously fit and healthy body with next to no help from umpteen apathetic doctors, physios, chiropractors, osteopaths etc etc. So I had to do my own research and help myself little by little. Then I stumbled upon hypermobility and having previously been told that various bits of me were hypermobile by different practitioners, it all began to make sense. What clinched it was this forum and the little things people write that rang so many bells! It was such a relief, I'm sure many of you understand, so thanks. HEDS has now been confirmed by Prof G so it's official (but just a bit shocked how severe).

My biggest problem is with sitting and walking/running (and I previously ran 2 marathons!). I have already asked the south central group, but I would love to hear from anyone else who has (or even better has overcome) non-pain problems with sitting and walking, eg numb feet, pins and needles, muscle tightness, foot drop, over stepping, understepping, stumbling, slow leg, general lack of total control of legs after 'bad' sitting. This has had everyone totally puzzled.

Thanks for all the support,

Kay

[poppy]

hi and welcome.i think we've all gone through (a)not being believed (b) wondering what on earth is happening to us (c) wondering if we've gone crazy and are just imaging the pain.anyway you've found this fantastic place now where people believe and understand you

[Tally]

Hi Kay,
Welcome to the boards,
Tally

[ombili]

Hi Kay and welcome to another (former?) marathoner (I say former? because I personally am having a hard time giving up on the possibility of future marathons.) I am happy to see you here, although sorry about the circumstances.

[Elmo]

welcome to the boards kay, am new as well and finding new things out every day about Jhms, it's a nightmare having to give up on things that you love ! it's weird i was fit as a fiddle 2 years ago now it's down hill at least i got my apoinment to see the physio in 2 weeks can't wait to get a bit stronger..only took me 18 weeks to see her lol but look on the good side you get to meet all these good people who have lots of info on anythink and everythink good luck xxx

[Kayzee]

Ooh another Kay how exciting, I think thats 3 of us now

Welcome to the site, and I look forward to getting to know you:)

Kay x

[hannah]

Hi Kay

Welcome - am a little suspicious that we may have been emailing each other??

Hope you get some answers m'dear.

Hannah

[Retro]

Hi Kay,

Welcome to the HMSA

Lindsey

[Rosie]

Hi Kay

and welcome to the boards.



Rosie

[Spireite]

Thanks everyone and hi Hannah,

Yes I noticed there were unusually a few Kays round here.

Yes msmay, I too am having trouble with the idea I'll never run another marathon again. I haven't totally given up on another marathon a long time in the future and I do still run short distances, in a fashion, and it's getting better very slowly but still ain't good! Then I have a 'sitting accident' and back to square one again!!! How about you? Even a shorter run if they gave me a medal at the end would be great too.

Kay

[Trina]

Welcome to the forum Spireite,

Trina

[walesrose]

Hi Kay and welcome to this wonderful site im new here and have found it so helpful and the people omg what can i say! they are so wonderful,encouraging,helpful,sympathetic and funny
Please enjoy these ppl and look forward to getting to know you and just remember that your not alone now we are all here for you in our own little ways
take care
best wishes
jakki xx

[sarahh]

Hi ya and welcome to the boards, The site is full of info and really supportive people.

Sarah x

Diagnosed with hms 7 years ago at 13

[Princess_Sarah]

Hey hey

A very warm welcome from me

Take care,

Sarah x

[sanguine_emma]

Hello Kay

Tis I - Emma from south central. Welcome to the boards! Are you by any chance originally from Chesterfield? I was wondering where the Spireite name came from (I'm from Derby originally).

Kayzee, we have two Kays in the south central group .

Emma xx