I hope you're work is going well so far. The reason I haven't posted before was beause I just didn't know what to say. I have been thinking a
lot about it, so here goes (if it doesn't make sense for you, please ignore)
When telling people about HMS I say "it means my ligaments don't hold my bones in place properly" in the most matter of fact tone I can. If they were just curious they wince and change the subject, if they are genuine they usually say 'doesn't it hurt' "yes, a lot". It seems to give people a fair picture without lots of explanation.
I keep thinking that I am approaching 'normal' in what I can do too ( I can get all the way to the kitchen from my desk without crutches some days), and then realise that actually I'm not (I cant get back
) Actually I keep some of the crossness, adn convert it to determination - it helps me not to give up - I might not be able to do it now, but I will be able to.
I also look at what I can do. it is lots more than a year ago. also I am so much better at coping. when my body does something wierd I roll my eyes and think 'HMS again'
instead of worrying about it for ages.
HMS is teaching me patience and perseverence, empathy and appreciation for all the small things people do for me (I posted about this in the poems thread). These are undeniably positive, and really, if you look at people around you, they can be healthy but totally miserable because they can't appreciate things. I think that is perhaps something that has helped me most.
Anyway, I really must shut up now.
All the best,