Thanks for all your replies.
And Sue cheers for the link to other thread in doc & diagnosis
I have started on supplements , but its the weight bearing exercises that
are a problem.My ankle subluxes on walking although not all the time.Its hard with EDS to get the balance. They say walking or cycling(!!) is best.
How do you all get weight bearing done??
I guess its hard to compare as our age of diagnosis is different to the normal 'post menapausal ' women who suffer from it. How is anyones progressing?Do you have repeat scans after a period of supplements?
I'm thinking a year later or so.
Again thanks all for your input.
See you all soon