Thank you so much for your concerns and good thoughts, I'm sorry it's taken so long to reply but it's been a bit tougher than I expected. The surgery itself went fine, although my nerve block was pretty tricky. having it done under the block was pretty odd, I spoke with the surgeon throughout the op and even watched part of it in the reflective lights - very bizarre watching your own arm being attacked with hammers! I had a lot of problems after the surgery sadly, as my nerve block wore off as they were stitching the wound. It should have lasted 46 hours, but I was in agony by the time I reached the ward, ending up going into shock from the pain. Needed a lot of pain meds and the cast loosening as the swelling was causing major pressure - not a fun night!
Hoped things world settle once I got home, but the pain, bruising and swelling just continued, causing concerns about compartment syndrome. It's been a pretty rough ride with the pain from the bone trauma and the pressure on the nerves from the swelling etc too, kind of like electric shocks up my arm the whole time. I think it's probably one of the most painful surgeries I've had so far and it's certainly brutal! I don't think I was fully prepared for how stressful, draining and painful it would be. It's really knocked me sideways, as apart form the post op pain, having to keep the arm elevated over night has caused havoc with my dodgy shoulder, the cast has caused sores as I'm so skinny and I also have a slight wound infection too. Oh well, hopefully it will all be worth it in the long run!
I get my stitches out on Wednesday hopefully and will go into a full, light weight cast. My arm feels kind of odd at the moment, rather alien and like it doesn't belong to me. Even though I've had it "externally fused" being casted for 2 years, it's taking me a while to comprehend the internal fix. It's crazy looking at your arm knowing it won't even bend again! Thanks to my hypermobility in have good ROM in my fingers, although it's pretty painful with the tendons rubbing on the plate at the moment and there's little strength in my hand functions. Hopefully with time and physio that will improve, although it's possible I will need the plate removing in the future if it causing too much problems with me being so bony.
Anyway, I'm seriously stretching my typing limits here so I'd best head off. Thank you again for all your support and kind wishes, they mean a lit to me. LoL Az, I'm not sure about being a wrist fusion expert, but I'll certainly be here if anyone facing the same needs advice any time. Have to admit, it's not a surgery I would recommend unless absolutely necessary though as it's painful, brutal and very final - and of course you've spoken many times previously of the domino effect from fusions too. Due to the complex nature of my condition and situation, I've been forced to face such last resorts sadly. This is my second fusion surgery and I'm facing at least one (ankle), possibly three more in the coming years, but they really are final options for my medical team. Speaking from real experience, to anyone considering a fusion at all, I would implore them to look at every other option and if it is the only way, to fully study/understand the implications and consequence of the surgery before going ahead, as they are difficult, painful surgeries, tough things to adapt to and live with and really aren't the best answer for any hypermobility related conditions.
Will let you know how things go as and when I can. Many thanks again for your support. Take care and know my thoughts and prayers are with you.
Love and hugs......Jo xx