emmafrith wrote:Dear friends
I've started having some problems and I'm wondering if anyone else has experienced anything similar. I've always had a bit of a heart murmur and I used to get palpitations from time to time (sort of a flutter-thud-flutter sort of feeling) I had them checked out about 10 years ago and no-one seemed to be unduly concerned about them.
I am a cardiac Nurse by trade when I am not falling apart EDS wise. There are two or three courses of action which you can take whilst the palpitations are not causing you any significant problems.
Are you still under the care of a cardiologist? I would think this unlikely..But some drs do have open appointments if you have an existing 'problem' such as a 'murmur'.
If you are under the care of a Rheumatologist from a HMS/EDS point of vview I would ask for a review if one is not periodically about to happen (in the next month or so) and at that I would ask for his opinion with regards to your palpitations and if it would be possible for you to be seen by a cardiologist. Doing it through your Rheumatologist may mean that he will be able to suggest a physician who has knowledge of HMS/EDS patients and is more likely to pick up on any autonomic disturbances which may be as a result of your HMS/EDS.
OR, and this may be the most convienient and appropriate, I would suggest that you go talk with your GP in the first instance and ask to be checked out by him/her. They will listen with a stethoscope. Then ask to be referred to a cardiolosist.
They may refer you for an ECG, or the drs practice may do one there and then. This will give them an idea of your rythumn and rate. BGe warned tho..if you are running high, they may admitt you for invgestigations.
Once referred to a cardiologist, you will probably be seen in outpatients and have a 24 hour ECG test also (wear sticky pads on like at the gym ) for 24 hours, measures your rhytumn and rate and gives a picture of any runs and what may cause or trigger them.
Finally, I have had episodes of these myself and in my case it was due to pregnancy. I also have thyroid disease and so I have an abnormal high rythumn b/c of that. So there are a lot of reasons and testing will help you to discover what is causing it. I wouls just urge you to go and find out as there are always some small concerns with existing murmurs that there is valve leakage etc (which is repairable!) but it is best to get sorted.
I wish you the best!