Well I remembered to take a book, good thing I did as he was running late - only half an hour though. He's a lovely man! Asked me what I wanted from the appointment, I said I just wanted a definite answer as to whether I have HMS or not as I have been told I have/haven't/have. He asked me loads of questions, following a pre-printed sheet. I had gone through my medical notes and made a list of dates of things, very glad I did as that was the main part of his questions, what has happened and when. Then he did a lot of measurements, got me to bend, stretch etc.
He said I have very stretchy skin (I didn't think I had!), confirmed my reaction to local anaesthetics was 'typical', basically nodded at a lot of the answers I gave, and was very pleased I am losing weight, he said that will help. I ended up with a referral to Physio at St Johns. He has definitely confirmed I have HMS, and obviously I haven't got the report yet but on the physio referral form it said Beighton score 7 and Brighton +ve.
married with a bendy daughter, three cats, HEDS, asthma, mild OCD, eczema and multiple allergies.