Can I ask your advice? Prof G when diagnosing EDS last September, wrote in my letter he suspects autonomic dysfunction and or PoTS, I've wrote to him twice as has my GP, andnim not moaning cause I know how busy he is, butnive not had a reply.
Lately I've been getting more ill, I've always had what we think of as fibro fogs and been dippy and forgetful, I also have a sleep disorder and take nhs amphetameanies
but I've started having "blank outs" ie forgetting what I am doing, doing very dangerous things, stupid things, that's cant explain, my GP has considered ADHD and focal epilepsy, the best way I can describe what happens is : wheniam bored, stressed or frustrated, I get a sinking feeling in my tummy, like driving over a big hill in a car too fast, I sweat, my eyes roll backwards and I can't keep them open, pins and needles run through my legs and hands and I feel terrified.
Along with many other pots auto dysfunction symptoms that I won't bore you with, does this sound like anything you guys have?
EDS type 3, Fibromyalgia, suspected PoTS, OCD, asthma, PTSD, Periodic limb movement disorder & raynauds.