I definitely related to this article, although my care at the moment isn't too bad. I'm slightly annoyed that rheumatology have decided to ignore me for the moment, given that I have bone and joint problems and I would have thought that that's what rheumatologists do. Orthopedics aren't interested because they can't operate on me.
In fact the only specialty showing an interest in me at the moment is endocrinology, as I am recovering from osteomalacia (adult rickets). And I can't get a referral to the pain clinic because they only take consultant referrals, and my endo is not considered qualified to refer me (has to be rheumy or orthopods).
So having worked my way round the entire hospital, except for the prostate specialist and maternity, I'm now back with my GP and effectively no consultant input. And my poor GP does act like he'd rather have some higher authority to call on, for advice, if nothing else!
I do get a little fed up of having my multitudinous problems treated individually too, especially as one impacts on the other. For instance, I have chronic asthma, making me very susceptible to chest infections. When I get a chest infection, I cough; when I cough I dislocate or sublux ribs, leading to severe pain.
I also sometimes feel that we patients have a rationed amount of diseases and once we go over that 'quota', we are treated like we're doing it on purpose. I've even been referred to a psychologist for hypochondria, only for it to become quickly apparent my anxiety was about real stuff that was actually happening to me, rather than imaginary stuff. I don't think my imagination goes that far! (the shrink did diagnose and treat me for Post-traumatic Stress Disorder, resulting from several, life-threatening, medical events; so the referral turned out for the best).
I am not sure that complex patients necessarily need hospital consultants though, just a key doctor who is prepared to spend time with us, sorting out the mess of different diagnoses and talking to us about how it is affecting us. What we really need is time, which is generally in short supply in the NHS these days. But without it, mistakes get made and patients start suffering mental health problems on top of their physical problems, like depression, anxiety and like me, PTSD.