Shoulder... Help/advice please!

[mazza111]

Just on the reading front. It could also make her mind overactive. The way you get when you've got a book you just can't put down. I was like that last night, stayed up reading a Val McDermid book that I just couldn't put down. Woke up with the book still in my hand. Wrists are killing me today l

Interesting on the paracetamol thoughts. When my mum was in nursing, one of the old matrons (yes way back then!!) insisted that each patient on her ward were prescribed 2 paracetamol before bed, even if they were on sleeping pills. Mum swears by paracetamol before bed.

The most helpful advice I got on here about sleep problems was pillows, especially if there are any problems with subluxing or dislocations in the night. Pillow between the knees etc. We've since found out my daughter sleeps better cocooned in them. Pillows between knees, under knees, about 3 under one shoulder. Think that's just a comfort thing though, when she's got that going on she finds it easier to sleep.

[gila]

mazza- I used to often wake up still 'death clawing' book and yep, bwoy does it hurt!
have a look at this thread
viewtopic.php?f=5&t=3603&p=156827&hilit=book+holder#p156827
my easy read bookholder has saved me from a lot of finger/hand/wrist pain, wouldnt be without it!
(oh I like Val too)

galij- great to be able to help a bit
and yep, since being hit by HMS my muscles dont seem to relax by themselves, my 'now natural' is tense and I have to forever think and correct, consciously try to relax... every bit... whatever I do ...
but I also find 'winding down' my mind quite hard- if I dont read and thereby distract my mind, I'll be lying in bed mulling over everything that happened today, will poss happen tomorrow etc etc etc and that keeps me from falling asleep whilst even a v v v v exciting book actually doesnt.

re amitriptylene- it's not a 'sleep med' as such- it's an old school tricyclic anti depressant that in a low dose (lower than for depr) can work and is often prescribed for nerve type pain and it helps with getting deep stage sleep (which in turn also can help with pain)
it has its own thread on here- worth perusing
xxg

[mazza111]

Does that work in bed? oO

I only read in bed, wasn't sure if that would work.

[Gailj]

DD was off school again yesterday Just about every joint seemed to be aching, even her jaw was crunching and clunking
She didn't even try to tackle the stairs until tea time, but she did manage some sleep, albeit broken.
I gave her 2 codeines before bed last night, she only agrees to take them when she is really bad.
Bless her, she tries to be a tough cookie, but some days it's like she's been hit with a lead brick!

Mazza, I'm a Val McDermid fan too
I agree that a good book is hard to put down, but DD always tries to settle first, or has a couple of hours then is wide awake again, she says reading just eases the middle of the night boredom!

I bought DD a matress topper and some new pillows at the weekend, the plan was to get them put on her bed for her yesterday, but she didn't want to move, so will try again today
xx

[gila]

mazza- so as to not go too ot- I'll pm you

[mazza111]

The pillows and mattress topper were the best advice I've had hon, hope it helps her. We didn't get the topper because she had a new memory foam mattress on the bed. The pillows have made an enormous difference though. They don't always stay where they should but the must do for the majority of the time as she doesn't wake up with so many dislocations these days

[Rosie]

Hi

I used to sue a V-pillow to help relieve shoulder pain at night, but now i am using a shaped memory foam pillow which supports my head, neck and shoulder in a good position. Mind you, i still need other pillows underneath it.

Rosie

[paw]

I got some down alternative pillows about 9 months ago. I thought they were the best pillows I ever had. I realized that over time they have squished down a lot though and they are no longer as good as they were at first. One of the best things about them is I can give the pillow a little punch with my fist and the area where my ear lies on the pillow has a little depression and I don't get a squished ear. They also form whatever shape I put them into around my shoulder/neck/whatever I need.

I do wish that they stayed fluffy and big longer. These particular pillows were quite a bit more expensive than I usually buy. I got them on a really good sale. Pillows are very important for people with shoulder injuries.

[Ames]

Hello,


I wanted to ask those of you that sleep with pillows under your shoulders where exactly you put them? I actually found this post searching for shoulders/sleep because mine push/roll forward in my sleep and I wake up in agony (tbh I'm not sure they're dislocating but all my weight is on top of them in an awkward position) and will see what other posts I can find but as a lot of people here seem to be recommending pillows (I already have a memory foam one but it doesn't help much) and it would probably be useful to the original poster that I would ask here.

Amy x

[Jwalk]

I have just had a problem with my left shoulder, sort of felt like it wasn't sitting right and a lot of pain on moving, going from my left side up into my shoulder and neck in spasms.Its getting better nw after a couple of weeks.
But, not wanting to be outdone my youngest son who is 13 and waiting to see a physio for his joint problems, was reaching for a drink last night and seems to have done the same thing !
I took him to the GP who says it doesn't seem to be dislocated but may be sub luxated, it seems to be lower down on that side.
He said if the pain doesn't get better with paracetamol to take him to A & E jic though for an X-ray.
Its only since he was showing me last night that i realised he can do a weird thing with his shoulder blades, they stick out when he flexes or moves his arms, just another quirk !
I don't fancy hours waiting in A & E and don't expect they will be able to do anything for him, but is it a good idea to take him in any case ? Maybe then at least they can see why I am nagging about seeing someone for his joints.
He was out playing football yesterday and I think that has caused this.If he does PE at school his hip or thigh to something will hurt afterwards.A skinny young boy of 13 should not be having so many joint issues IMO.
He is like a mini me but 35 or so years too soon ! I have pain every day in one joint or another, but I am 49 now and don't remember getting so many problems at his age.
We have a routine 6 monthly appointment with his paediatrician this Friday, she was the Dr who refered him to the GI in leeds for the eosinophilic oesophogitis, so i will mention all this then anyway.
Also, we are waiting to see a physio, is this the best person to see about possible hypermobility ? I throught a rheumatologist dealt with that sort of thing, or maybe an orthopaedic Dr ?
TIA