Hypermobility Syndrome Association
Why we would like you to take us up on the offer!
This year we are celebrating our 20th Anniversary and we need you all to help take us forward for the next 20 years.
As many of you are probably aware, in 1992 the Hypermobility Syndrome Association was born! The charity was created with the support of the medical advisors to the HMSA and patients with HMS. Many of the original founders are still members or advisors today and we thank them for all the hard work that they did in the past. We should also thank the hardworking trustees, medical advisors, staff and volunteers who continue to fight to raise awareness of HMS in the public arena.
Today the HMSA works with service providers and medical/health care staff to ensure that service users can receive appropriate support. There is still a lot of work which needs to be continued in this area but we are slowly but surely getting the message across.
Over the last few years the HMSA has also started working with schools and Special Education Needs Coordinators to ensure that children who are affected by their HMS are not at a disadvantage within the education system. We have been pleasantly surprised by the attitudes of schools, especially in regard to offering sport/ PE, which in our children’s case is probably a vital part of the successful management of HMS. Obviously our children need to be at the stage where they are able to participate, which for those severely affected may not be to after they have had treatment.
The HMSA regularly contributes to consultations into national health policy via its work with National Voices, Genetic Alliance and the Long Term Condition Alliance in Scotland. We are often asked to attend conferences, including patient conferences, to discuss the work of the HMSA.
Many of you will have noticed that the HMSA is now more than ever before asked to support the research into various aspects of hypermobility syndromes. This is vital work and will increase our understanding of what is now known to be a very complex condition.
We are asking that members consider increasing their funding of the HMSA to allow us to continue our work and to develop our involvement in research projects, such as with Prof. Qasim Aziz’s team who are looking into HMS and gastrointestinal disorders. As you all know we were unable at this stage to offer direct funding to their project but it is hoped that with the help of members that we could consider other projects in the future.
However, we really do appreciate how the current economical climate is affecting us all, so we have come up with a tiered scheme below. Please do consider supporting the HMSA over the next 12 months onwards as below.
We would like to ask you all to consider paying your membership by NEW STANDING ORDERS. We have some benefits to offer as below!
Single adult membership (over 16yrs must be adult);
Pay just £1 per month via a NEW STANDING ORDER and we will send a free car sticker celebrating the HMSA’s 20th Anniversary!
All other U.K. memberships;
Pay just £2 per month via a NEW STANDING ORDER and we will send you a car sticker (as above) and an eco-friendly shopping bag, worth £5!
Pay £3 per month via a NEW STANDING ORDER and we will send you a car sticker (as above), an eco-friendly shopping bag and a new 20th Anniversary Mug, worth £13.95!
Pay £4 or more per month via a NEW STANDING ORDER and we will send you a car sticker (as above), an eco-friendly shopping bag, a new 20th Anniversary Mug and a copy of the popular Residential 2010 DVD, worth £23.95!
In your newsletter packs you will find new standing order forms. To receive the gifts above please just complete the new standing order mandate and return it to the HMSA office address as below. Please do not forget to cancel the old standing order to prevent any confusion. We hope that many of you will take up the new membership deal to help us to continue to finance the work that we do.
Users browsing this forum: No registered users and 1 guest